Other content tagged: news
Pregnancy and childbirth in times of COVID-19: Parent organisation “Ranni Ptashky – Early Birds” launches webinar series in Ukraine
The global COVID-19 pandemic has posed particular challenges to families around the world, especially those who had or are expecting a baby in the midst of it. Hospitals put safety measures into place in order to keep staff and patients from contracting and spreading COVID-19, at times with harsh consequences. For new and expecting parents, this has made pregnancy, childbirth, and life postpartum more difficult to navigate and added further levels of stress…
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Neonatal Nurses Association (NNA) gathers high-level experts on virtual conference
As the pandemic continues and conferences and workshops are still being held digitally the Neonatal Nurses Associations pulled off a virtual conference with a great line up of sessions and speakers. Under the motto "Embracing Change", the event focused on the many contemporary tasks and challenges in newborn care, of which some have been significantly intensified by the pandemic. EFCNI Chairwoman Silke Mader also had the opportunity to share the parents' perspective on neonatal health and care procedures. Moreover, in…
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FINE trainings in Hungary: How to train medical staff in times of a pandemic
A guest article by Livia Nagy Every year more than 8,000 newborns begin their lives in premature intensive care units of different levels in Hungary. The pillars of family-centred care are absent from numerous units, one of the most significant of these being the lack of opportunities for the 24-hour presence of parents and their involvement in the care of their children. In 2019 the Government of Hungary set family-friendly values and the implementation of family and child-friendly approaches as…
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High Accolades for Asociatia Prematurilor in Romania
We are so pleased to hear that our partner organisation in Romania, Asociatia Prematurilor (The Romanian Association of Premature Babies), has been awarded the Civil Solidarity Prize by the European Economic and Social Committee (EESC). Congratulations for this well-deserved recognition of your hard work! Asociatia Prematurilor received the prize as well as 10,000 Euros in prize money for its project “Support for Medical Staff and Newborns in Maternity – Protective Equipment and Apparatus Against…
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Welcome to the EFCNI network, The TAPS Support Foundation
We are happy to announce that a new parent organisation has joined our network: The TAPS Support Foundation from the Netherlands! The TAPS Support Foundation is dedicated to raising awareness about TAPS, an acronym for Twin Anemia Polycythemia Sequence, and advocates in favour of changing the way monochrionic pregnancies are diagnosed and treated. TAPS is a rare disease that affects twins who share a placenta. Somewhere in the placenta, a small surface…
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RECAPpreterm Cohort Platform will soon be accessible
RECAPpreterm is a research project developing a unique data platform that will allow researchers to find and use data from very preterm and very low birth weight cohorts to answer research questions. The Cohort Platform will bring together extensive data from 20 population-based cohorts of children and young adults born very preterm from 13 European countries as well as further cohorts from around the world. End of January, the project’s General…
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Expert Roundtable on Safe Parenteral Nutrition
How to take care of safe parenteral nutrition - a life-saving treatment for preterm or severely sick infants EFCNI hosted two digital roundtables on parenteral nutrition with the aim to improve optimal nutritional care of preterm or severely sick babies who cannot be adequately fed by mouth or through a feeding tube. On this occasion, a multidisciplinary panel of German key experts in this field including neonatologists, pharmacists, hygiene experts, nurses and parent representatives as well as representatives of…
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Queen Elizabeth II honours Inga Warren
Inga Warren from NIDCAP Federation International has been appointed Commander of the Order of the British Empire (CBE) in the Queen's New Year's Honours for her services to preterm born babies. This is one of the highest accolades given and is a wonderful recognition, justly deserved, of her work and dedication to babies and their families. Inga Warren is a neonatal development specialist with extensive experience as an occupational therapist working with children of…
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World Prematurity Day 2020: “Together for babies born too soon – Caring for the future”
As we have been doing since 2008, EFCNI and its friends, supporters, and partner organisations celebrated World Prematurity Day on 17 November and used the day to raise awareness for the issue of preterm birth and the challenges it poses for babies born too soon and their families. The Motto This year’s theme was “Together for babies born too soon – Caring for the future”. It highlights that caring for preterm babies means, in fact, actively investing and empowering future…
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Delivering transformative action in paediatric pain: a Lancet Child & Adolescent Health Commission
Pain is a feeling every child and adolescent, will experience in their lives. Yet, unrecognised, undertreated, or poorly managed pain in childhood can have long-lasting negative consequences such as chronic pain, disability and distress. Even though there are several tools, expertise, and evidence available to handle childhood pain more successfully, pain is too often silenced and relief too infrequently given. Therefore, it is time for a change. The Lancet…
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