EFCNI is an advocate for preterm infants, ill newborns, and their families. Our work is dedicated to improving the situation of pregnant women and newborn infants in Europe across the full spectrum of care, promoting and protecting the right to the best start in life. Our work is based on the following three pillars:

Establishing a powerful network

We combine forces of all stakeholders involved and foster collaboration to achieve our common vision by:

  • Partnering with parents, healthcare professionals, scientists and their respective societies as well as with policy-makers, international non-profit and private sector organisations
  • Empowering national parent organisations through networking events, special trainings and workshops

Raising awareness

We call attention to the growing challenge of preterm birth and its significant impact on children, families, and our societies by:

  • Running awareness campaigns
  • Constructive dialogue with political decision-makers and opinion-leaders
  • Making the patient’s voice heard in the healthcare setting

Sharing best practice

We gather and multiply information to improve and implement high-quality treatment and care by:

  • Coordinating interdisciplinary projects, e.g. European Standards of Care for Newborn Health
  • Providing easy-to-understand and widely accessible information for free for families and professionals
  • Participating in research and providing advice from the patient’s perspective
  • Organising and hosting conferences, workshops, and roundtables
  • Developing factsheets and position papers, e.g. on the set-up and operation of milk banks

EFCNI Events – celebrating, educating and sharing ideas

Position paper / Toolkits – topics we are specially focussing on

Campaigns – combining forces and raising awareness

EFCNI Changemaker Map – Let us know about your activities and events and be part of the changemaker map

Research participation – EFCNI supports research projects in neonatology

Conferences & Congresses – find all important conferences in our calender

Awareness days – list of awareness days celebrated on behalf of preterm and ill babies

Partner activities – news from our partner organisations and their activities

EFCNI a selected member of the EMA’s Patient and Consumer Working Party (PCWP)