Research Projects

EFCNI welcomes inquiries from researchers and institutions who seek patient representation

A collaborative network for the development and evaluation of new drugs for children

Developing a Core OUtcome Set and outcome measures of family-centred care In Neonatal care

First 1000 days – Strategies to Prevent Childhood Obesity

Infant and family-centred developmental care in times of COVID-19 – A global survey of parents’ experiences

INSPIRE: International Neonatal Transfusion Point Prevalence-study

The NOMINATE project: Novel Outcome Measures IN AuToimmune DiseasE

PREMSTEM: The brain injury in the premature born infant: stem cell regeneration network

ResQ Family: Impact of Respiratory Syncytial Virus Hospitalisation on Quality of Life of Families – A Multi-Country Study

TREOCAPA: Prophylactic treatment of the ductus arteriosus in preterm infants by acetaminophen

Research projects (ended)

Providing the bridge from data collection to data sharing, and establishing a digital research platform on very preterm babies

Screening and following up to improve health in very preterm infants in Europe