Research news

13 September 2019

Series of RECAP cohorts – part 6: Follow-up of the POPS cohort in the Netherlands

Dr Sylvia van der Pal & Professor Erik Verrips In 1983, a unique nationwide cohort of 1.338 very preterm (below 32 weeks of gestation) or VLBW (birth weight below 1500...

13 September 2019

Applying a “living guidelines” approach to keep recommendations up to date

How can the WHO most efficiently keep its global recommendations up to date? BMJ Global Health has recently published the insightful article "Developing and applying a 'living guidelines' approach to...

13 September 2019

PARCA-R: Screening of cognitive and language delay in preterm born infants

The standardisation on over 6000 infants of the PARCA-R for the screening of cognitive and language delay has just been published in the Lancet Child & Adolescence Health. 6000 infants...

22 August 2019

Establishing a human milk bank – an interview with Prof. Rolf Schlösser

Interview with Professor Rolf Schlösser, University Hospital Frakfurt, Germany Question: What were the reasons for establishing the human milk bank at the University Hospital Frankfurt? For a long time, our...

21 August 2019

Series of RECAP cohorts – part 5: The Bavarian Longitudinal Study (BLS)/Bayerische Entwicklungsstudie (BEST)

Following our series about cohorts of the EU-funded project ‘Research on European Children and Adults born Preterm’ (RECAP preterm), we are delighted to give you an insight into The Bavarian...

13 August 2019

Parenteral nutrition for ill and preterm infants – meeting nutritional needs in the NICU

Interview with Professor Nadja Haiden, Medical University of Vienna, Austria Babies with a healthy digestive tract usually get their nutrition by drinking breastmilk and digesting. This provides the body with...

23 July 2019

Perinatal palliative care: Giving parents support when a pregnancy goes wrong

Interview with Dr Fauzia Paize Perinatal palliative care (PPC) is a fairly new subspecialty within palliative care. What are the main ideas behind this new concept? Dr Paize: Healthcare professionals...

17 July 2019

Anti-VEGF drug ranibizumab: A new treatment option against retinopathy of prematurity?

Retinopathy of prematurity (ROP) is an eye disease that only occurs in very premature babies (usually preterm babies born before the 31st week or born with a birthweight below 1250...

17 July 2019

Preterm babies are less likely to form romantic relationships in adulthood

Adults who were born preterm (under 37 weeks gestation) are less likely to have a romantic relationship, a sexual partner and experience parenthood than those born full term. The meta-analysis...

15 July 2019

Series of RECAP cohorts – part 4: the NTNU Low Birth Weight Life study from Norway

In our series about cohorts of the EU-funded project „Research on European Children and Adults born Preterm“ (RECAP preterm), we presented the Project Extreme Prematurity (PEP) from Norway. We are...

04 July 2019

The RECAP preterm project: Steering committee meeting in Leiden

From 1 to 3 July 2019, the steering committee of the RECAP preterm (Research on European Children and Adults born Preterm) project met in Leiden in Southern Netherlands. All work...

28 June 2019

How the ESPR seeks to improve medical care and clinical practice in Paediatrics

Within the monthly topic ‘Medical care and clinical practice’ of our campaign 11 Months - 11 Topics, we present you the European Society for Paediatric Research (ESPR), an organisation which...

27 June 2019

Expert feedback wanted: new EMA guideline drafted for public consultation

The European Medicines Agency (EMA) released a draft guideline for public consultation on the quality requirements for medical devices in human medicines that include a medical device, known as drug-device...

27 June 2019

Improving parents’ and infants’ experiences and outcomes of neonatal care: invitation to the 7th SCENE Symposium

SCENE (Separation and Closeness Experiences in the Neonatal Environment) is a multi-disciplinary group of international professionals that aims to improve parents’ and infants’ experiences and outcomes of neonatal care. The...

26 June 2019

Series of RECAP cohorts – part 3: the Project Extreme Prematurity (PEP) from Norway

We are delighted to present you a third example of our series about cohorts of the EU-funded project „Research on European Children and Adults born Preterm“ (RECAP preterm): the Project...

05 June 2019

Research on Bronchopulmonary dysplasia (BPD) in preterm babies

Interview with Prof Christoph Bührer, Medical Director Department of Neonatology, Charité Berlin Within our monthly topic of medical care and clinical practice, we talked to Prof Bührer about his work...

28 May 2019

Empower Parents – Enable Breastfeeding: EFCNI supports World Breastfeeding Week 2019

To support this year’s World Breastfeeding Week, EFCNI is reaching out to healthcare experts AND mothers as well as their partners with a survey, asking for your experiences, advice, challenges...

23 May 2019

EMA drafts guideline for medicinal products containing genetically modified cells – Feedback wanted!

The European Medicines Agency has released a draft guideline on quality, non-clinical and clinical aspects of medicinal products containing genetically modified cells for public consultation. This guideline aims at defining...

22 May 2019

Standards featured in The Lancet Child & Adolescent Health

The European Standards of Care for Newborn Health and some of the experts who contributed to the development of the standards, are featured in a new publication by The Lancet...

20 May 2019

Standards presented in Brussels and Kiev

The international ‚roadshow‘ about the European Standards of Care for Newborn Health is in full swing. Here is an update of the latest presentations about the project: On 16 May...

15 May 2019

Series of RECAP cohorts – part 2: the cohorts of the EPICure Studies in the United Kingdom and Ireland

In our new series about cohorts of the EU-funded project „Research on European Children and Adults born Preterm“ (RECAP preterm), we recently reported about the ESTONIA I & II cohorts....

08 May 2019

Very preterm babies: Large differences in the use of specialist health services in different European countries

Very preterm babies (born earlier than 32 weeks gestational age) suffer more frequently from various impairments, such as motor, hearing, vision, developmental and cognitive impairments, compared to term babies, and...

06 May 2019

EFCNI supports study by c4c research collaboration on paracetamol in preterm babies

Since last year, EFCNI has been involved as a third party representing the voice of patients and parents in the new conect4children (c4c) consortium, a research collaboration to build a...

17 April 2019

New series on cohorts of the Research on European Children and Adults born Preterm (RECAP preterm) project

Our new series presents the cohorts of the EU-funded project „Research on European Children and Adults born Preterm“ (RECAP preterm), which aims at contributing to a better understanding on the...

05 April 2019

Euro-Peristat – more and better data for perinatal health

Euro-Peristat is a European research project that aims to improve perinatal health. The project collaborators and contributing experts developed common tools to assess perinatal health problems and health care in...

02 April 2019

Training for parent organisations: workshop on the implementation of the standards

Training and knowledge about the European Standards of Care for Newborn Health are key for their implementation in the different countries. This is why EFCNI is thrilled to welcome another...

28 March 2019

Regulatory Science to 2025 strategy – The European Medicine Agency (EMA) asks for stakeholders’ feedback

The European Medicine Agency (EMA) has published its draft on a "Regulatory Science to 2025" strategy for public consultation. Regulatory science is defined as the range of scientific disciplines that...

28 February 2019

EFCNI shares a parental view on cluster randomised controlled trials in newborn babies

EFCNI has repeatedly expressed concern about the lack of evidence in the treatment of newborn babies and has called for more research in this field. EFCNI is firmly convinced that...

28 February 2019

Collecting quality data is key: registries of babies treated for Retinopathy of Prematurity (ROP) can improve health, care, and science

Retinopathy of Prematurity (ROP) is a disease of the eye affecting preterm born babies. It is characterised by changes in the developing blood vessels of the retina (the light-sensitive layer...

26 February 2019

Neonatal real world data for research purposes – what is the parents’ view?

Real world data (RWD) in medicine is data derived from a number of sources, for instance surveys or focus group interviews that are associated with outcomes in a heterogeneous patient...

20 December 2018

How parents can help reduce and manage procedural pain in the NICU

In the neonatal intensive care unit (NICU), ill and preterm babies face a number of unpleasant and painful procedures, such as heel sticks to obtain blood samples, attachment and removal...

23 November 2018

Experts call for father- and family-friendly processes in the neonatal units

The importance of bonding between mother and child is widely known, but a recent literature review paper[1], published in the Journal of Neonatal Nursing, shows that the bonding between father...

05 November 2018

Low levels of omega-3 fatty acids might be associated with a higher risk of preterm birth

For decades, there were ongoing discussions whether a high intake of fatty acids, either by eating more sea fish or by taking fish oil supplements, can reduce the risk of...

06 August 2018

EPICE/SHIPS consortium provides new knowledge on breast milk feeding of very preterm infants in Europe

On the occasion of World Breastfeeding Week 2018, we are happy to share these recent findings regarding practices of breastfeeding preterm infants. As a proud partner within the EPICE/SHIPS research...

13 June 2018

First RECAP preterm-related publication is out – a meta-analysis on the association of preterm birth and adult markers of wealth

RECAP preterm proudly announces that a first research paper is published now in Pediatrics: Bilgin, Mendonca & Wolke performed a metanalysis investigating whether preterm birth and low birth weight are...

08 June 2018

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