Research news
17 July 2019
Anti-VEGF drug ranibizumab: A new treatment option against retinopathy of prematurity?
Retinopathy of prematurity (ROP) is an eye disease that only occurs in very premature babies (usually preterm babies born before the 31st week or born with a birthweight below 1250...
Read More 17 July 2019
Preterm babies are less likely to form romantic relationships in adulthood
Adults who were born preterm (under 37 weeks gestation) are less likely to have a romantic relationship, a sexual partner and experience parenthood than those born full term. The meta-analysis...
Read More 15 July 2019
Series of RECAP cohorts – part 4: the NTNU Low Birth Weight Life study from Norway
In our series about cohorts of the EU-funded project „Research on European Children and Adults born Preterm“ (RECAP preterm), we presented the Project Extreme Prematurity (PEP) from Norway. We are...
Read More 04 July 2019
The RECAP preterm project: Steering committee meeting in Leiden
From 1 to 3 July 2019, the steering committee of the RECAP preterm (Research on European Children and Adults born Preterm) project met in Leiden in Southern Netherlands. All work...
Read More 28 June 2019
How the ESPR seeks to improve medical care and clinical practice in Paediatrics
Within the monthly topic ‘Medical care and clinical practice’ of our campaign 11 Months - 11 Topics, we present you the European Society for Paediatric Research (ESPR), an organisation which...
Read More 27 June 2019
Expert feedback wanted: new EMA guideline drafted for public consultation
The European Medicines Agency (EMA) released a draft guideline for public consultation on the quality requirements for medical devices in human medicines that include a medical device, known as drug-device...
Read More 27 June 2019
Improving parents’ and infants’ experiences and outcomes of neonatal care: invitation to the 7th SCENE Symposium
SCENE (Separation and Closeness Experiences in the Neonatal Environment) is a multi-disciplinary group of international professionals that aims to improve parents’ and infants’ experiences and outcomes of neonatal care. The...
Read More 26 June 2019
Series of RECAP cohorts – part 3: the Project Extreme Prematurity (PEP) from Norway
We are delighted to present you a third example of our series about cohorts of the EU-funded project „Research on European Children and Adults born Preterm“ (RECAP preterm): the Project...
Read More 05 June 2019
Research on Bronchopulmonary dysplasia (BPD) in preterm babies
Interview with Prof Christoph Bührer, Medical Director Department of Neonatology, Charité Berlin Within our monthly topic of medical care and clinical practice, we talked to Prof Bührer about his work...
Read More 28 May 2019
Empower Parents – Enable Breastfeeding: EFCNI supports World Breastfeeding Week 2019
To support this year’s World Breastfeeding Week, EFCNI is reaching out to healthcare experts AND mothers as well as their partners with a survey, asking for your experiences, advice, challenges...
Read More 23 May 2019
EMA drafts guideline for medicinal products containing genetically modified cells – Feedback wanted!
The European Medicines Agency has released a draft guideline on quality, non-clinical and clinical aspects of medicinal products containing genetically modified cells for public consultation. This guideline aims at defining...
Read More 22 May 2019
Standards featured in The Lancet Child & Adolescent Health
The European Standards of Care for Newborn Health and some of the experts who contributed to the development of the standards, are featured in a new publication by The Lancet...
Read More 20 May 2019
Standards presented in Brussels and Kiev
The international ‚roadshow‘ about the European Standards of Care for Newborn Health is in full swing. Here is an update of the latest presentations about the project: On 16 May...
Read More 15 May 2019
Series of RECAP cohorts – part 2: the cohorts of the EPICure Studies in the United Kingdom and Ireland
In our new series about cohorts of the EU-funded project „Research on European Children and Adults born Preterm“ (RECAP preterm), we recently reported about the ESTONIA I & II cohorts....
Read More 08 May 2019
Very preterm babies: Large differences in the use of specialist health services in different European countries
Very preterm babies (born earlier than 32 weeks gestational age) suffer more frequently from various impairments, such as motor, hearing, vision, developmental and cognitive impairments, compared to term babies, and...
Read More 06 May 2019
EFCNI supports study by c4c research collaboration on paracetamol in preterm babies
Since last year, EFCNI has been involved as a third party representing the voice of patients and parents in the new conect4children (c4c) consortium, a research collaboration to build a...
Read More 17 April 2019
New series on cohorts of the Research on European Children and Adults born Preterm (RECAP preterm) project
Our new series presents the cohorts of the EU-funded project „Research on European Children and Adults born Preterm“ (RECAP preterm), which aims at contributing to a better understanding on the...
Read More 05 April 2019
Euro-Peristat – more and better data for perinatal health
Euro-Peristat is a European research project that aims to improve perinatal health. The project collaborators and contributing experts developed common tools to assess perinatal health problems and health care in...
Read More 02 April 2019
Training for parent organisations: workshop on the implementation of the standards
Training and knowledge about the European Standards of Care for Newborn Health are key for their implementation in the different countries. This is why EFCNI is thrilled to welcome another...
Read More 28 March 2019
Regulatory Science to 2025 strategy – The European Medicine Agency (EMA) asks for stakeholders’ feedback
The European Medicine Agency (EMA) has published its draft on a "Regulatory Science to 2025" strategy for public consultation. Regulatory science is defined as the range of scientific disciplines that...
Read More 28 February 2019
EFCNI shares a parental view on cluster randomised controlled trials in newborn babies
EFCNI has repeatedly expressed concern about the lack of evidence in the treatment of newborn babies and has called for more research in this field. EFCNI is firmly convinced that...
Read More 28 February 2019
Collecting quality data is key: registries of babies treated for Retinopathy of Prematurity (ROP) can improve health, care, and science
Retinopathy of Prematurity (ROP) is a disease of the eye affecting preterm born babies. It is characterised by changes in the developing blood vessels of the retina (the light-sensitive layer...
Read More 26 February 2019
Neonatal real world data for research purposes – what is the parents’ view?
Real world data (RWD) in medicine is data derived from a number of sources, for instance surveys or focus group interviews that are associated with outcomes in a heterogeneous patient...
Read More 20 December 2018
How parents can help reduce and manage procedural pain in the NICU
In the neonatal intensive care unit (NICU), ill and preterm babies face a number of unpleasant and painful procedures, such as heel sticks to obtain blood samples, attachment and removal...
Read More 23 November 2018
Experts call for father- and family-friendly processes in the neonatal units
The importance of bonding between mother and child is widely known, but a recent literature review paper[1], published in the Journal of Neonatal Nursing, shows that the bonding between father...
Read More 05 November 2018
Low levels of omega-3 fatty acids might be associated with a higher risk of preterm birth
For decades, there were ongoing discussions whether a high intake of fatty acids, either by eating more sea fish or by taking fish oil supplements, can reduce the risk of...
Read More 06 August 2018
EPICE/SHIPS consortium provides new knowledge on breast milk feeding of very preterm infants in Europe
On the occasion of World Breastfeeding Week 2018, we are happy to share these recent findings regarding practices of breastfeeding preterm infants. As a proud partner within the EPICE/SHIPS research...
Read More 13 June 2018
First RECAP preterm-related publication is out – a meta-analysis on the association of preterm birth and adult markers of wealth
RECAP preterm proudly announces that a first research paper is published now in Pediatrics: Bilgin, Mendonca & Wolke performed a metanalysis investigating whether preterm birth and low birth weight are...
Read More 08 June 2018
Regenerative Therapies for sick term and preterm born infants
An interview with Professor Mario Rüdiger, Professor for Neonatology and Pediatric Intensive Care Medicine, Head of Department at the Neonatal Research Group at the University Hospital Dresden, Germany What was the...
Read More 19 May 2018
Obesity in children and adolescents: a growing global health challenge
The number of obese children and adolescents has risen dramatically in the past four decades, reveals a large study that was published in The Lancet in October 2017. Although more...
Read More 17 April 2018
Breastfeeding during vaccinations reduces pain
Essential, but painful: needles are used for babies’ early childhood vaccinations and medical care during childhood illnesses. They cause distress for the babies and often also for their parents and...
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