EFCNI publications list
Journal articles
2020
- European Standards of Care for Newborn Health—A project protocol. Acta Paediatrica 2020; 00: 1–6. Lindacher V, Altebaeumer P, Marlow N, Matthaeus V, Straszewski IN, Thiele N, Pfeil JM, Zimmermann LJI, Mader S. https://doi.org/10.1111/apa.15712
- Tackling bronchopulmonary dysplasia (BPD) to improve preterm health – A call for family-centred care at World Prematurity Day 2020. American Journal of Physiology-Lung Cellular and Molecular Physiology 2020; 319(5): L867-L870. Zimmermann LJI, Kostenzer J, Mader S. https://doi.org/10.1152/ajplung.00415.2020
- Parents’ ratings of post-discharge healthcare for their children born very preterm and their suggestions for improvement: a European cohort study, Pediatric Research 2020. Seppänen A, Sauvegrain P, Draper ES, Toome L, El Rafei R, Petrou S, Barros H, Zimmermann LJI, Cuttini M, Zeitlin J. https://doi.org/10.1038/s41390-020-01120-y
2019
- Should formula for infants provide arachidonic acid along with DHA? A position paper of the European Academy of Paediatrics and the Child Health Foundation.The American Journal of Clinical Nutrition 2019; 111(1): 10-16. Koletzko B, Bergmann K, Thomas Brenna J, Calder P, Campoy C, Tom Clandinin M, Colombo J, Daly M, Decsi T, Demmelmair H, Domellöf M, FidlerMis N, Gonzalez-Casanova I, van Goudoever JB, Hadjipanayis A, Hernell O, Lapillonne A, Mader S, Martin CR, Matthäus V et al. https://doi.org/10.1093/ajcn/nqz252
- Ethical, Legal, and Religious Aspects at the Border of Viability. Frontiers in Pediatrics 2019; 7:175. Oehmke F, Lauer T, Baecker J, Mader S, Soydan N, Born T, Brumhard M, Dettmeyer R, Staszewski S, Heinemann T, Kilian U, Sarikaya Y, Kress H, Tinneberg H-R, Bilgin Y, Zimmer K-P, Ehrhardt H. https://doi.org/10.3389/fped.2019.00175
2018
- Parental views on the principles for cluster randomised trials involvingneonates and infants. Acta Paediatrica 2019; 108(5): 789-791. Thiele N, Walz JM, Lindacher V, Mader S, Greisen G, on behalf of the EFCNI Parents Advisory Board. https://doi.org/10.1111/apa.14664
- Clinical trials in neonates: How to optimize informed consent and decision making? A European Delphi survey of parent representatives and clinicians. PLoS ONE 2018; 13(6): e0198097. Neyro V, Elie V, Thiele N, Jacqz-Aigrain E. https://doi.org/10.1371/journal.pone.0198097
- Erwartungen von Eltern an die Versorgung von Frühgeborenen – Sicht einer Elternvertretung. Frauenheilkunde up2date 2018; 12(1): 75-86. Walz JM, Thiele N, Mader S. https://doi.org/10.1055/a-0580-5479
- Erwartungen von Eltern an die Versorgung von Frühgeborenen – Sicht einer Elternvertretung. Neonatologie Scan 2018; 7(1): 61-72. Walz JM, Thiele N, Mader S. https://doi.org/10.1055/s-0044-100846
- Empfehlungen zur Förderung von Frauenmilchbanken in Deutschland, Österreich und der Schweiz (D-A-CH-Raum). Monatsschrift Kinderheilkunde 2018; 166(8): 722-729. Matthäus V, Haiden N, Abou-Dakn M, Berns M, Eglin K, Flemmer A, et al. https://doi.org/10.1007/s00112-018-0447-9
2017
- Neonatal Clinical Trials for Preterm Labor: Takeaways & Insights into Increasing Enrollment of Patient Families. Neonatal intensive care: the journal of perinatology-neonatology 2017; 30(4). Discenza D, Sorrells K, Thiele N.
2016
- Parents as Partners in Care: Seven Guiding Principles to Ease the Collaboration. Newborn and Infant Nursing Reviews 2016; 16(2): 66-68. Thiele N, Knierim IN, Mader S. https://doi.org/10.1053/j.nainr.2016.03.012
- Combining forces for preterm infants – the European Foundation for the Care of Newborn Infants (EFCNI). infant journal 2016; 12(6): 228-230. Knierim IN, Matthäus V, Schönberg U, Mader S, Thiele N.
- Verbundenheit und Stärke über gemeinsame Ziele. Fiduz-Infoblatt 2016; 38(2). Mader S, Matthäus V.
2014
- Public–Private Collaboration in Clinical Research During Pregnancy, Lactation, and Childhood: Joint Position Statement of the Early Nutrition Academy and the European Society for Pediatric Gastroenterology, Hepatology, and Nutrition. Journal of Pediatric Gastroenterology and Nutrition 2014; 58(4): 525-530. Koletzko B, Benninga MA, Godfrey KM, Hornnes P J, Kolacek S, Koletzko S, Lentze MJ, Mader S, McAuliffe FM, et al. https://doi.org/10.1097/MPG.0000000000000284
- Maternal and perinatal health research priorities beyond 2015: an international survey and prioritization exercise. Reproductive Health 2014; 11:61. Souza JP, Widmer M, Gülmezoglu AM, Lawrie TA, Adejuyigbe, EA, Carroli G, Crowther C, Currie SM, Dowswell T, Hofmeyr J, Lavender T, Lawn J, Mader S, et al. https://doi.org/10.1186/1742-4755-11-61
- Nachsorge von Frühgeborenen oder kranken Neugeborenen. Kinder- und Jugendmedizin 2/2014. Mader S & Polus S.
2013
- NIDCAP Federation International Response. Pediatrics 2013; 132(2): e550-e551. Lawhon G, Helm JM, Buehler D, McAnulty G, Kosta S, Alberts JR., Als H, Mader S, et al. https://doi.org/10.1542/peds.2013-1447B
2010
- Policy benchmarking report on neonatal health and social policies in 13 European countries. Acta Paediatrica 2010; 99(11): 1624-1629. Keller M, Felderhoff-Mueser U, Lagercrantz H, Dammann O, Marlow N, Hüppi P, Buonocore G, Poets C, Simbruner G, Guimaraes H, Mader S, et al. https://doi.org/10.1111/j.1651-2227.2010.01894.x
Advisory Group Member
2014
- From evidence to action to deliver a healthy start for the next generation. Lancet 2014; 384(9941): 455-467. Mason E, McDougall L, Lawn JE, Gupta A, Claeson M, Pillay Y et al. https://doi.org/10.1016/S0140-6736(14)60750-9
EFCNI publications
2012
- Born Too Soon. The Global Action Report on Preterm Birth. Eds. Howson CP, Kinney MV, Lawn JE. March of Dimes, PMNCH, Save the Children, World Health Organization. New York 2012. (technical editor)
2011
- Caring for Tomorrow. EFCNI White Paper on Maternal and Newborn Health and Aftercare Services. Eds. Keller M, Saugstad OD, van Steenbrugge G, Mader S, Thiele N. European Foundation for the Care of Newborn Infants. Munich 2011.
2010
- Too little, too late? Why Europe should do more for preterm infants. EU Benchmarking Report 2009/2010. Eds. Keller M, Lagercrantz H, Merialdi M, Poets C, Saugstad OD. European Foundation for the Care of Newborn Infants. Munich 2010. (co-author)
Book chapters
2014
- Expérience des parents de nouveau-nés prématurés pendant et après l’hospitalisation. Mader S & Bouvard C. In Soins de développement en période néonatale. Sizun J, Guillois B, Casper C, Thiriez G & Kuhn P (Eds.) (2014)
2013
- The situation and the challenges with regard to preterm birth in Europe – Why reducing the incidence of preterm birth matters and the main components needed to sucessfully address the challenges. Haumont D, Zimmermann LJI, & Mader S. In Improving the quality of childhood in Europe 2013, Volume 4. Heys B, Matthes M, & Sullivan P (Eds.) (2013) Forrest Row: ECSWE.