EFCNI publications list

Journal articles

• Ethical, Legal, and Religious Aspects at the Border of Viability. Front. Pediatr. 2019 7:175. doi: 10.3389/fped.2019.00175. Oehmke F, Lauer T, Baecker J, Mader S, Soydan N, Born T, Brumhard M, Dettmeyer R, Staszewski S, Heinemann T, Kilian U, Sarikaya Y, Kress H, Tinneberg H-R, Bilgin Y, Zimmer K-P and Ehrhardt H (2019)
• Parental views on the principles for cluster randomised trials involvingneonates and infants. Acta Paediatr. 2018 Nov 26. doi: 10.1111/apa.14664. Nicole Thiele , Johanna M. Walz, Verena Lindacher, Silke Mader, Gorm Greisen, on behalf of the EFC NI Parents Advisory Board (2018)
• Clinical trials in neonates: How to optimize informed consent and decision making? A European Delphi survey of parent representatives and clinicians. PLoS ONE, 13(6): e0198097. Neyro V, Elie V, Thiele N, Jacqz-Aigrain E (2018)
• Erwartungen von Eltern an die Versorgung von Frühgeborenen – Sicht einer Elternvertretung. Frauenheilkunde up2date, 12(1), 75-86. Walz JM, Thiele N, Mader S (2018)
• Erwartungen von Eltern an die Versorgung von Frühgeborenen – Sicht einer Elternvertretung. Neonatologie Scan, 7(1), 61-72. Walz JM, Thiele N, Mader S (2018)
• Empfehlungen zur Förderung von Frauenmilchbanken in Deutschland, Österreich und der Schweiz (D-A-CH-Raum). Monatsschr Kinderheilkd, 166(8), 722-9. Matthäus V, Haiden N, Abou-Dakn M, Berns M, Eglin K, Flemmer A, et al. (2018)
• Neonatal Clinical Trials for Preterm Labor: Takeaways & Insights into Increasing Enrollment of Patient Families. Neonatal intensive care: the journal of perinatology-neonatology 30(4). Discenza D, Sorrells K, Thiele N. (2017)
• Parents as Partners in Care: Seven Guiding Principles to Ease the Collaboration. Newborn and Infant Nursing Reviews 16(2). Thiele N, Knierim IN, Mader S. (2016)
• Combining forces for preterm infants – the European Foundation for the Care of Newborn Infants (EFCNI). infant journal 12(6). Knierim IN, Matthäus V, Schönberg U, Mader S, Thiele N. (2016)
• Verbundenheit und Stärke über gemeinsame Ziele. Fiduz-Infoblatt 38(2). Mader S, Matthäus V. (2016)
• Public–Private Collaboration in Clinical Research During Pregnancy, Lactation, and Childhood: Joint Position Statement of the Early Nutrition Academy and the European Society for Pediatric Gastroenterology, Hepatology, and Nutrition. Journal of Pediatric Gastroenterology and Nutrition 58(4).
  Koletzko B, Benninga MA, Godfrey KM, Hornnes PJ, Kolacek S, Koletzko S, Lentze MJ, Mader S, McAuliffe FM, et al. (2014)
• Maternal and perinatal health research priorities beyond 2015: an international survey and prioritization exercise. Reproductive Health 11(1).
  Souza JP, Widmer M, Gülmezoglu AM, Lawrie TA, Adejuyigbe, EA, Carroli G, Crowther C, Currie SM, Dowswell T, Hofmeyr J, Lavender T, Lawn J, Mader S, et al. (2014)
• Nachsorge von Frühgeborenen oder kranken Neugeborenen. Kinder- und Jugendmedizin 2/2014. Mader S & Polus S. (2014)
• NIDCAP Federation International Response. Pediatrics 132(2).
  Lawhon G, Helm JM, Buehler D, McAnulty G, Kosta S, Alberts JR., Als H, Mader S, et al. (2013)
• Policy benchmarking report on neonatal health and social policies in 13 European countries. Acta paediatrica 99(11).
  Keller M, Felderhoff-Mueser U, Lagercrantz H, Dammann O, Marlow N, Hüppi P, Buonocore G, Poets C, Simbruner G, Guimaraes H, Mader S, et al. (2010)

Advisory Group Member:

• From evidence to action to deliver a healthy start for the next generation. Lancet 384(9941).
  Mason, E., McDougall, L., Lawn, J. E., Gupta, A., Claeson, M., Pillay, Y. et al. (2014)

EFCNI publications

• Born Too Soon. The Global Action Report on Preterm Birth. Eds. Howson CP, Kinney MV, Lawn JE. March of Dimes, PMNCH, Save the Children, World Health Organization. New York 2012. (technical editor)
• Caring for Tomorrow. EFCNI White Paper on Maternal and Newborn Health and Aftercare Services. Eds. Keller M, Saugstad OD, van Steenbrugge G, Mader S, Thiele N. European Foundation for the Care of Newborn Infants. Munich 2011.
• Too little, too late? Why Europe should do more for preterm infants. EU Benchmarking Report 2009/2010. Eds. Keller M, Lagercrantz H, Merialdi M, Poets C, Saugstad OD. European Foundation for the Care of Newborn Infants. Munich 2010. (co-author)

Book chapters

• Expérience des parents de nouveau-nés prématurés pendant et après l’hospitalisation.
  Mader S & Bouvard C. In Soins de développement en période néonatale. J Sizun, B Guillois, C Casper, G Thiriez & P Kuhn (Eds.) (2014)
• The situation and the challenges with regard to preterm birth in Europe – Why reducing the incidence of preterm birth matters and the main components needed to sucessfully address the challenges.
  Haumont D, Zimmermann L, & Mader S. In Improving the quality of childhood in Europe 2013, Volume 4. B Heys, M Matthes, & P Sullivan (Eds.) (2013) Forrest Row: ECSWE.