EFCNI publications list

Journal articles

2020

Making human milk matter: the need for EU regulation. The Lancet 2021; 5(3):161-163. Kostenzer J et al. https://doi.org/10.1016/S2352-4642(21)00021-3
European Standards of Care for Newborn Health—A project protocol. Acta Paediatrica 2020; 00: 1–6. Lindacher V, Altebaeumer P, Marlow N, Matthaeus V, Straszewski IN, Thiele N, Pfeil JM, Zimmermann LJI, Mader S. https://doi.org/10.1111/apa.15712
Tackling bronchopulmonary dysplasia (BPD) to improve preterm health – A call for family-centred care at World Prematurity Day 2020. American Journal of Physiology-Lung Cellular and Molecular Physiology 2020; 319(5): L867-L870. Zimmermann LJI, Kostenzer J, Mader S. https://doi.org/10.1152/ajplung.00415.2020
Parents’ ratings of post-discharge healthcare for their children born very preterm and their suggestions for improvement: a European cohort study, Pediatric Research 2020. Seppänen A, Sauvegrain P, Draper ES, Toome L, El Rafei R, Petrou S, Barros H, Zimmermann LJI, Cuttini M, Zeitlin J. https://doi.org/10.1038/s41390-020-01120-y

2019

Should formula for infants provide arachidonic acid along with DHA? A position paper of the European Academy of Paediatrics and the Child Health Foundation.The American Journal of Clinical Nutrition 2019; 111(1): 10-16. Koletzko B, Bergmann K, Thomas Brenna J, Calder P, Campoy C, Tom Clandinin M, Colombo J, Daly M, Decsi T, Demmelmair H, Domellöf M, FidlerMis N, Gonzalez-Casanova I, van Goudoever JB, Hadjipanayis A, Hernell O, Lapillonne A, Mader S, Martin CR, Matthäus V et al. https://doi.org/10.1093/ajcn/nqz252
Ethical, Legal, and Religious Aspects at the Border of Viability. Frontiers in Pediatrics 2019; 7:175. Oehmke F, Lauer T, Baecker J, Mader S, Soydan N, Born T, Brumhard M, Dettmeyer R, Staszewski S, Heinemann T, Kilian U, Sarikaya Y, Kress H, Tinneberg H-R, Bilgin Y, Zimmer K-P, Ehrhardt H. https://doi.org/10.3389/fped.2019.00175

2018

Parental views on the principles for cluster randomised trials involvingneonates and infants. Acta Paediatrica 2019; 108(5): 789-791. Thiele N, Walz JM, Lindacher V, Mader S, Greisen G, on behalf of the EFCNI Parents Advisory Board. https://doi.org/10.1111/apa.14664
Clinical trials in neonates: How to optimize informed consent and decision making? A European Delphi survey of parent representatives and clinicians. PLoS ONE 2018; 13(6): e0198097. Neyro V, Elie V, Thiele N, Jacqz-Aigrain E. https://doi.org/10.1371/journal.pone.0198097
Erwartungen von Eltern an die Versorgung von Frühgeborenen – Sicht einer Elternvertretung. Frauenheilkunde up2date 2018; 12(1): 75-86. Walz JM, Thiele N, Mader S. https://doi.org/10.1055/a-0580-5479
Erwartungen von Eltern an die Versorgung von Frühgeborenen – Sicht einer Elternvertretung. Neonatologie Scan 2018; 7(1): 61-72. Walz JM, Thiele N, Mader S. https://doi.org/10.1055/s-0044-100846
Empfehlungen zur Förderung von Frauenmilchbanken in Deutschland, Österreich und der Schweiz (D-A-CH-Raum). Monatsschrift Kinderheilkunde 2018; 166(8): 722-729. Matthäus V, Haiden N, Abou-Dakn M, Berns M, Eglin K, Flemmer A, et al. https://doi.org/10.1007/s00112-018-0447-9

2017

Neonatal Clinical Trials for Preterm Labor: Takeaways & Insights into Increasing Enrollment of Patient Families. Neonatal intensive care: the journal of perinatology-neonatology 2017; 30(4). Discenza D, Sorrells K, Thiele N.

2016

Parents as Partners in Care: Seven Guiding Principles to Ease the Collaboration. Newborn and Infant Nursing Reviews 2016; 16(2): 66-68. Thiele N, Knierim IN, Mader S. https://doi.org/10.1053/j.nainr.2016.03.012
Combining forces for preterm infants – the European Foundation for the Care of Newborn Infants (EFCNI). infant journal 2016; 12(6): 228-230. Knierim IN, Matthäus V, Schönberg U, Mader S, Thiele N.
Verbundenheit und Stärke über gemeinsame Ziele. Fiduz-Infoblatt 2016; 38(2). Mader S, Matthäus V.

2014

Public–Private Collaboration in Clinical Research During Pregnancy, Lactation, and Childhood: Joint Position Statement of the Early Nutrition Academy and the European Society for Pediatric Gastroenterology, Hepatology, and Nutrition. Journal of Pediatric Gastroenterology and Nutrition 2014; 58(4): 525-530. Koletzko B, Benninga MA, Godfrey KM, Hornnes P J, Kolacek S, Koletzko S, Lentze MJ, Mader S, McAuliffe FM, et al. https://doi.org/10.1097/MPG.0000000000000284
Maternal and perinatal health research priorities beyond 2015: an international survey and prioritization exercise. Reproductive Health 2014; 11:61. Souza JP, Widmer M, Gülmezoglu AM, Lawrie TA, Adejuyigbe, EA, Carroli G, Crowther C, Currie SM, Dowswell T, Hofmeyr J, Lavender T, Lawn J, Mader S, et al. https://doi.org/10.1186/1742-4755-11-61
Nachsorge von Frühgeborenen oder kranken Neugeborenen. Kinder- und Jugendmedizin 2/2014. Mader S & Polus S.

2013

NIDCAP Federation International Response. Pediatrics 2013; 132(2): e550-e551. Lawhon G, Helm JM, Buehler D, McAnulty G, Kosta S, Alberts JR., Als H, Mader S, et al. https://doi.org/10.1542/peds.2013-1447B

2010

Policy benchmarking report on neonatal health and social policies in 13 European countries. Acta Paediatrica 2010; 99(11): 1624-1629. Keller M, Felderhoff-Mueser U, Lagercrantz H, Dammann O, Marlow N, Hüppi P, Buonocore G, Poets C, Simbruner G, Guimaraes H, Mader S, et al. https://doi.org/10.1111/j.1651-2227.2010.01894.x

Advisory Group Member

2014

From evidence to action to deliver a healthy start for the next generation. Lancet 2014; 384(9941): 455-467. Mason E, McDougall L, Lawn JE, Gupta A, Claeson M, Pillay Y et al. https://doi.org/10.1016/S0140-6736(14)60750-9

EFCNI publications

2012

Born Too Soon. The Global Action Report on Preterm Birth. Eds. Howson CP, Kinney MV, Lawn JE. March of Dimes, PMNCH, Save the Children, World Health Organization. New York 2012. (technical editor)

2011

Caring for Tomorrow. EFCNI White Paper on Maternal and Newborn Health and Aftercare Services. Eds. Keller M, Saugstad OD, van Steenbrugge G, Mader S, Thiele N. European Foundation for the Care of Newborn Infants. Munich 2011.

2010

Too little, too late? Why Europe should do more for preterm infants. EU Benchmarking Report 2009/2010. Eds. Keller M, Lagercrantz H, Merialdi M, Poets C, Saugstad OD. European Foundation for the Care of Newborn Infants. Munich 2010. (co-author)

Book chapters

2014

Expérience des parents de nouveau-nés prématurés pendant et après l’hospitalisation. Mader S & Bouvard C. In Soins de développement en période néonatale. Sizun J, Guillois B, Casper C, Thiriez G & Kuhn P (Eds.) (2014)

2013