EFCNI publications list

Journal articles

2022

• Welt-Frühgeborenen-Tag 2022 – Mit Baby- und familienzentrierter, entwicklungsfördernder Betreuung die besten Startbedingungen ins Leben schaffen. Kinderkrankenschwester 2022; 11. Fügenschuh S, Mader S. www.kinderkrankenschwester.eu
• Early-life residential exposure to moisture damage is associated with persistent wheezing in a Finnish birth cohort. Wiley Online Library. Tischer C, Täubel M, Kirjavainen P, Depner M, HyvärinenA, Piippo-Savolainen E, Pekkanen J, Karvonen A. https://doi.org/10.1111/pai.13864
• Respiratory Syncytial Virus (RSV): burden, risks, and the way forward – calling for a collaborative approach at World Prematurity Day 2022. APS. Tischer C, Kostenzer J, Mader S, Zimmermann L. https://doi.org/10.1152/ajplung.00302.2022
• Health-related quality of life of children born very preterm: a multinational European cohort study.  Qual Life Res. Sung Wook Kim, Andronis L, Seppänen A, Aubert A, Barros H, Draper E, Sentenac M, Zeitlin J & Petrou S On Behalf of the SHIPS Research Group, including Mader S, Thiele N, Pfeil J. https://doi.org/10.1007/s11136-022-03217-9
• An international study on implementation and facilitators and barriers for parent-infant closeness in neonatal units. Pediatric Investigation.  van Veenendaal N, Labrie N, Mader S, van Kempen A, van der Schoor S, van Goudoever J, CROWN Study Group. https://onlinelibrary.wiley.com/doi/10.1002/ped4.12339 
• The assessment of future RSV immunizations: How to protect all infants? Frontiers in Pediatrics, 10, 981741. Bont L, Weil Olivier C, Herting E, Esposito S, Navarro Alonso JA, Lega F, Mader S, Morioka I, Shen K, Syrogiannopoulos GA, Faust SN, Bozzola E. https://www.frontiersin.org/articles/10.3389/fped.2022.981741/full 
• Nährstoffsupplementierung vor, während und nach der Schwangerschaft: Ergebnisse der cluster-randomisierten „Gesund leben in der Schwangerschaft“-Studie. Geburtshilfe und Frauenheilkunde. Geyer K, Günther J, Hoffmann J, Spies M, Raab R, Zhelyazkova A, Rose I, Hauner H. https://www.thieme-connect.de/products/ejournals/html/10.1055/a-1771-6368?articleLanguage=de#info
• Parents’ experiences regarding neonatal care during the COVID- 19 pandemic: country-­specific ­findings ­of ­a multinational survey. BMJ Open. Kostenzer J, von Rosenstiel- Pulver C, Hoffmann J, Walsh A, Mader S, Zimmermann L. J I, on behalf of the COVID- 19 Zero Separation Collaborative Group. doi:10.1136/bmjopen-2021-056856
• Child Anthropometrics and Neurodevelopment at 2 and 3 Years of Age Following an Antenatal Lifestyle Intervention in Routine Care—A Secondary Analysis from the Cluster-Randomised GeliS Trial. Journal of Clinical Medicine. Spies M, Geyer K, Raab R, Brandt S, Meyer D, Günther J, Hoffmann J, and Hauner H.  https://doi.org/10.3390/jcm11061688 
• Are pre- and early pregnancy lifestyle factors associated with the risk of preterm birth? A secondary cohort analysis of the cluster-randomised GeliS trial. BMC Pregnancy and Childbirth. Raab R, Hoffmann J, Spies M, Geyer K, Meyer D, Günther J, Hauner H. https://doi.org/10.1186/s12884-022-04513-5
• Prozess zur Implementierung Evidenzbasierter Parenteraler Ernährung in Deutschen Perinatalzentren – Ergebnisse eines Multidisziplinären Netzwerks. Zeitschrift für Geburtshilfe & Neonatologie 2022.  Hoffmann J, Haiden N, Babl J, Fusch C, Kostenzer J, Piening B, Schubert S, Mader S, Arbeitsgruppe parenterale Ernährung von EFCNI, GNPI, ADKA.  https://www.thieme-connect.de/products/ejournals/abstract/10.1055/a-1711-3281
• Management and outcomes of extreme preterm birth. BMJ 2022; 376:e055924. Morgan AS, Mendonça M, Thiele N, David AL. https://doi.org/10.1136/bmj-2021-055924 

2021

• Ein Handlungsaufruf am Welt-Frühgeborenen-Tag: „Zero separation. Together for better care!“ Baby- und familienzentrierte entwicklungsfördernde Betreuung in Zeiten der COVID-19-Pandemie. Kinderkrankenschwester 2021; 10. Kostenzer J, Brunck A, Abenstein A, Zimmermann LJI, Mader S. www.kinderkrankenschwester.eu
• Zero separation: infant and family-centred developmental care in times of COVID-19. The Lancet Child and Adolescent Health. 2021. Kostenzer J, Zimmermann LJI, Mader S, on behalf of the EFCNI COVID-19 Zero Separation Collaborative Group. https://doi.org/10.1016/S2352-4642(21)00340-0 
• RSV: perspectives to strengthen the need for protection in all infants. Emerg Themes Epidemiol. 2021;18(1):15. Navarro Alonso JA, Bont LJ, Bozzola E, Herting E, Lega F, Mader S, Nunes MC, Ramilo O, Valiotis G, Weil Oliver C, Yates A, Faust SN. https://doi:10.1186/s12982-021-00104-5
• Neonatal care during the COVID-19 pandemic – a global survey of parents’ experiences regarding infant and family-centred developmental care. EClinicalMedicine. 2021;39:101056. Kostenzer J, Hoffmann J, von Rosenstiel-Pulver C, Walsh A, Zimmermann LJI, Mader S. https://doi.org/10.1016/j.eclinm.2021.101056 
• A call for zero separation – restrictive policies and their impact on neonatal care in light of COVID-19. Infant 2021; 17(3). Fügenschuh S, Kostenzer J. www.infantjournal.co.uk/journal_article.html?id=7217
• Maßnahmen und praktische Tipps zur Verbesserung der parenteralen Ernährung bei Früh- und kranken Neugeborenen. Kinderkrankenschwester 2021; 8. Fügenschuh S, Hoffmann J, Mader S.  www.kinderkrankenschwester.eu
• Parenterale Ernährung bei Früh- und kranken Neugeborenen – Ergebnisse einer Umfrage zu Barrieren in der klinischen Anwendung. Kinderkrankenschwester 2021; 7:195-197. Hoffmann J, Fügenschuh S, Mader S. www.kinderkrankenschwester.eu
• Parenterale Ernährung bei Frühgeborenen. Frühgeborene 2021; 2:41-44. Fügenschuh S, Hoffmann J, Mader S. www.fruehgeborene.de/der-verband/verbandsmagazin-fruehgeborene
• Parenterale Ernährung in deutschen Perinatalzentren. Monatsschrift Kinderheilkunde 2021; 169(6). Hoffmann J, Haiden N, Babl J, Fusch C, Piening B, Schubert S, Mader S, Arbeitsgruppe parenterale Ernährung von EFCNI, GNPI und ADKA. https://doi.org/10.1007/s00112-021-01219-4
• Making human milk matter: the need for EU regulation. The Lancet Child and Adolescent Health 2021; 5(3):161-163. Kostenzer J et al. https://doi.org/10.1016/S2352-4642(21)00021-3

2020

• European Standards of Care for Newborn Health—A project protocol. Acta Paediatrica 2020; 00: 1–6. Lindacher V, Altebaeumer P, Marlow N, Matthaeus V, Straszewski IN, Thiele N, Pfeil JM, Zimmermann LJI, Mader S. https://doi.org/10.1111/apa.15712
• Tackling bronchopulmonary dysplasia (BPD) to improve preterm health – A call for family-centred care at World Prematurity Day 2020. American Journal of Physiology-Lung Cellular and Molecular Physiology 2020; 319(5): L867-L870. Zimmermann LJI, Kostenzer J, Mader S. https://doi.org/10.1152/ajplung.00415.2020
• Parents’ ratings of post-discharge healthcare for their children born very preterm and their suggestions for improvement: a European cohort study, Pediatric Research 2020. Seppänen A, Sauvegrain P, Draper ES, Toome L, El Rafei R, Petrou S, Barros H, Zimmermann LJI, Cuttini M, Zeitlin J. https://doi.org/10.1038/s41390-020-01120-y

2019

• Should formula for infants provide arachidonic acid along with DHA? A position paper of the European Academy of Paediatrics and the Child Health Foundation.The American Journal of Clinical Nutrition 2019; 111(1): 10-16. Koletzko B, Bergmann K,  Thomas Brenna J, Calder P, Campoy C,  Tom Clandinin M,  Colombo J, Daly M, Decsi T, Demmelmair H, Domellöf M, FidlerMis N, Gonzalez-Casanova I, van Goudoever JB, Hadjipanayis A, Hernell O, Lapillonne A, Mader S, Martin CR, Matthäus V et al. https://doi.org/10.1093/ajcn/nqz252
• Ethical, Legal, and Religious Aspects at the Border of Viability. Frontiers in Pediatrics 2019; 7:175. Oehmke F, Lauer T, Baecker J, Mader S, Soydan N, Born T, Brumhard M, Dettmeyer R, Staszewski S, Heinemann T, Kilian U, Sarikaya Y, Kress H, Tinneberg H-R, Bilgin Y, Zimmer K-P, Ehrhardt H. https://doi.org/10.3389/fped.2019.00175
• Föräldrarollen i neonatalvården behöver anpassas och utvecklas [The role of parents in neonatal care needs to be adapted and developed]. Läkartidningen. 2019;(116). Erikkson M, Rombo K, Mader S. https://lakartidningen.se/wp-content/uploads/EditorialFiles/R9/%5BFSR9%5D/FSR9.pdf

2018

• Parental views on the principles for cluster randomised trials involvingneonates and infants. Acta Paediatrica 2019; 108(5): 789-791. Thiele N, Walz JM, Lindacher V, Mader S, Greisen G, on behalf of the EFCNI Parents Advisory Board. https://doi.org/10.1111/apa.14664
• Clinical trials in neonates: How to optimize informed consent and decision making? A European Delphi survey of parent representatives and clinicians. PLoS ONE 2018; 13(6): e0198097. Neyro V, Elie V, Thiele N, Jacqz-Aigrain E.  https://doi.org/10.1371/journal.pone.0198097
• Erwartungen von Eltern an die Versorgung von Frühgeborenen – Sicht einer Elternvertretung. Frauenheilkunde up2date 2018; 12(1): 75-86. Walz JM, Thiele N, Mader S. https://doi.org/10.1055/a-0580-5479
• Erwartungen von Eltern an die Versorgung von Frühgeborenen – Sicht einer Elternvertretung. Neonatologie Scan 2018; 7(1): 61-72. Walz JM, Thiele N, Mader S. https://doi.org/10.1055/s-0044-100846
• Empfehlungen zur Förderung von Frauenmilchbanken in Deutschland, Österreich und der Schweiz (D-A-CH-Raum). Monatsschrift Kinderheilkunde 2018; 166(8): 722-729. Matthäus V, Haiden N, Abou-Dakn M, Berns M, Eglin K, Flemmer A, et al. https://doi.org/10.1007/s00112-018-0447-9

2017

• Neonatal Clinical Trials for Preterm Labor: Takeaways & Insights into Increasing Enrollment of Patient Families. Neonatal intensive care: the journal of perinatology-neonatology 2017; 30(4). Discenza D, Sorrells K, Thiele N.

2016

• Parents as Partners in Care: Seven Guiding Principles to Ease the Collaboration. Newborn and Infant Nursing Reviews 2016; 16(2): 66-68. Thiele N, Knierim IN, Mader S. https://doi.org/10.1053/j.nainr.2016.03.012
• Combining forces for preterm infants – the European Foundation for the Care of Newborn Infants (EFCNI). infant journal 2016; 12(6): 228-230. Knierim IN, Matthäus V, Schönberg U, Mader S, Thiele N.
• Verbundenheit und Stärke über gemeinsame Ziele. Fiduz-Infoblatt 2016; 38(2). Mader S, Matthäus V.

2014

• Public–Private Collaboration in Clinical Research During Pregnancy, Lactation, and Childhood: Joint Position Statement of the Early Nutrition Academy and the European Society for Pediatric Gastroenterology, Hepatology, and Nutrition. Journal of Pediatric Gastroenterology and Nutrition 2014; 58(4): 525-530. Koletzko B, Benninga MA, Godfrey KM, Hornnes P J, Kolacek S, Koletzko S, Lentze MJ, Mader S, McAuliffe FM, et al. https://doi.org/10.1097/MPG.0000000000000284
• Maternal and perinatal health research priorities beyond 2015: an international survey and prioritization exercise. Reproductive Health 2014; 11:61. Souza JP, Widmer M, Gülmezoglu AM, Lawrie TA, Adejuyigbe, EA, Carroli G, Crowther C, Currie SM, Dowswell T, Hofmeyr J, Lavender T, Lawn J, Mader S, et al. https://doi.org/10.1186/1742-4755-11-61
• Nachsorge von Frühgeborenen oder kranken Neugeborenen. Kinder- und Jugendmedizin 2/2014. Mader S & Polus S.

2013

• NIDCAP Federation International Response. Pediatrics 2013; 132(2): e550-e551. Lawhon G, Helm JM, Buehler D, McAnulty G, Kosta S, Alberts JR., Als H, Mader S, et al. https://doi.org/10.1542/peds.2013-1447B

2010

• Policy benchmarking report on neonatal health and social policies in 13 European countries. Acta Paediatrica 2010; 99(11): 1624-1629. Keller M, Felderhoff-Mueser U, Lagercrantz H, Dammann O, Marlow N, Hüppi P, Buonocore G, Poets C, Simbruner G, Guimaraes H, Mader S, et al. https://doi.org/10.1111/j.1651-2227.2010.01894.x
• 1209 Socioeconomic Impact of Preterm Birth in Germany and Austria: A Parental Perspective. Pediatric Research. 2010;68(S1):599. Karen T, Außerer A, Krimbacher M, Mader S, Keller M. doi:1203/00006450-201011001-01209 

Advisory Group Member

2020

• Standards for improving quality of care for small and sick newborns in health facilities. World Health Organization. Geneva 2020.

2019

• Survive and thrive: transforming care for every small and sick newborn. World Health Organization. Geneva 2019.

2014

• From evidence to action to deliver a healthy start for the next generation. Lancet 2014; 384(9941): 455-467. Mason E, McDougall L, Lawn JE, Gupta A, Claeson M, Pillay Y et al. https://doi.org/10.1016/S0140-6736(14)60750-9
• Every Newborn: an action plan to end preventable deaths. World Health Organization, UNICEF. Geneva 2014.

EFCNI publications

2021

• Zero separation. Together for better care! Infant and family-centred developmental care in times of COVID-19 – A global survey of parents’ experiences. Project Report. European Foundation for the Care of Newborn Infants (EFCNI), Kostenzer J, von Rosenstiel-Pulver C, Hoffmann J, Walsh A, Fügenschuh S, Abenstein A, Zimmermann L.J.I, Mader S. & COVID-19 Zero Separation Collaborative Group. EFCNI, Munich. 2021.
• Zero separation. Together for better care! Infant and family-centred developmental care in times of COVID-19 – A global survey of parents’ experiences. Project Report. Short Version. European Foundation for the Care of Newborn Infants (EFCNI), Kostenzer J, von Rosenstiel-Pulver C, Hoffmann J, Walsh A, Fügenschuh S, Abenstein A, Zimmermann L.J.I, Mader S. & COVID-19 Zero Separation Collaborative Group. EFCNI, Munich. 2021.

2012

• Born Too Soon. The Global Action Report on Preterm Birth. Eds. Howson CP, Kinney MV, Lawn JE. March of Dimes, PMNCH, Save the Children, World Health Organization. New York 2012. (technical editor)

2011

• Caring for Tomorrow. EFCNI White Paper on Maternal and Newborn Health and Aftercare Services. Eds. Keller M, Saugstad OD, van Steenbrugge G, Mader S, Thiele N. European Foundation for the Care of Newborn Infants. Munich 2011.

2010

• Too little, too late? Why Europe should do more for preterm infants. EU Benchmarking Report 2009/2010. Eds. Keller M, Lagercrantz H, Merialdi M, Poets C, Saugstad OD. European Foundation for the Care of Newborn Infants. Munich 2010. (co-author)

Book chapters

2022

• Involucrando a los padres en la alimentación de los lactantes prematuros.  Kolossa S, Mader S, Pfeil J, Zimmermann LJI.  In World Review of Nutrition and Dietetics. 2022, Volume 122, pp 302–310. Koletzko B et al. (Eds.)(2022)

2021

• Involving Parents in Feeding Their Preterm Infants.  Kolossa S, Mader S, Pfeil J, Zimmermann LJI.  In Nutritional Care of Preterm Infants. Scientific Basis and Practical Guidelines. World Review of Nutrition and Dietetics. 2021, Volume 2. Koletzko B et al. (Eds.)(2021)

2014

• Expérience des parents de nouveau-nés prématurés pendant et après l’hospitalisation. Mader S & Bouvard C. In Soins de développement en période néonatale. Sizun J, Guillois B, Casper C, Thiriez G & Kuhn P (Eds.) (2014)

2013

• The situation and the challenges with regard to preterm birth in Europe – Why reducing the incidence of preterm birth matters and the main components needed to successfully address the challenges. Haumont D, Zimmermann LJI, & Mader S. In Improving the quality of childhood in Europe 2013, Volume 4. Heys B, Matthes M, & Sullivan P (Eds.) (2013) Forrest Row: ECSWE

EFCNI editor

2022

• Special Issue “Decision Making at the Border of Viability and in Critically Ill Newborn Infants”. Ehrhardt H, Mader S (eds). Children. 2022. https://doi:10.3390/children9020207