Declaration - Ten requests for preterm infants
During the first European parents’ organisations meeting in November 2008, EFCNI together with parents’ organisations from 17 countries adopted the Declaration of Rome. This declaration was presented to MEP
Dr. Angelika Niebler on February 3rd, 2009 and contains the following demands:
Prioritise and raise awareness of the needs of preterm and newborn infants with illnesses
Research and implement measures for the prevention of preterm births
Consider the development and implementation of medical guidelines for the start of resuscitation of preterm infants in hospitals
Develop and implement independently controlled guidelines and quality standards for the treatment and care in hospitals of preterm and newborn infants with illnesses
Improve specialised and appropriate aftercare for developing pre-term and newborn infants with illnesses
Develop and implement structured programmes and systems to document medical check ups and aftercare for preterm and newborn infants with illnesses
Improve psychological and social care for parents of preterm and newborn infants with illnesses, in hospital and after discharge, by specialised healthcare professionals
Provide research funds for studies to improve the treatment, care and neonatal outcomes of preterm and newborn infants with illnesses
Consider prolonged maternity leave and maternity grants (financial support) for parents of preterm and newborn infants with illnesses
Provide appropriate schooling and educational support for developing preterm and newborn infants with illnesses
