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Other content tagged: news

European Standards of Care for Newborn Health – One year anniversary

We reached a lot, it was a long way. In November it has been exactly one year since the European Standards of Care for Newborn Health had been officially launched in the European Parliament in Brussels. 5 years of hard preparing work had come to a close. Yet, this marked the beginning of the next big steps: disseminating and implementing the standards! For a year, we have been on the roll with the "Standards roadshow" all over Europe - and…
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Become a patient expert and play an active role in the development of clinical trials

c4c(conect4children) is a large collaborative European network that aims to facilitate the development of new drugs and other therapies for the entire paediatric population. In this sense, the voices of children, young people and their families are a pivotal part of the innovative approach of c4c project. It places patients at the centre and will assign them an active role in the development of the different clinical trials that are going to be conducted…
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5th Global Summit for Preemies by Neišnešiotukas in Vilnius

The 5th Global Summit for Preemies in Vilnius, Lithuania – focusing on the European Standards of Care for Newborn Health – took place at the beginning of December. Together with Asta Radzevičienė (chairwoman, Preemies Parent Association Neišnešiotukas) the EFCNI Chairwoman Silke Mader welcomed healthcare professionals, parent organisations, NGOs, policy makers, payers and media at the 5th Global Summit for Preemies. Among the guests were the Minister of Health of the Republic of Lithuania Aurelijus Veryga,…
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One year anniversary of the European Standards of Care for Newborn Health

We reached a lot, it was a long way. In November it has been exactly one year since the European Standards of Care for Newborn Health had been officially launched in the European Parliament in Brussels. 5 years of hard preparing work had come to a close. Yet, this marked the beginning of the next big steps: disseminating and implementing the standards! For a year, we have been on the roll with the "Standards roadshow"…
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World Prematurity Day 2019 – A big campaign for small babies

“Born too Soon: Providing the right care, at the right time, in the right place” Worldwide, about 15 million babies are born preterm every year. That means approximately a baby out of 10 is a preterm baby and the numbers are rising. With the complications resulting from preterm birth being the leading cause of death among children under 5 years of age, which account for 1 million deaths per annum, preterm birth is a global, pressing issue. It puts emotional and…
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GLANCE – Global Alliance For Newborn Care

The new project website is now online On the occasion of World Prematurity Day, the website of our latest global project GLANCE, which was launched in January 2019, went online! Learn all you want to know about this project, its history, its vision and mission and get to know the founding and the committee members on www.glance-network.org  There you will also find contact details and further information if you would like to join GLANCE. GLANCE stands for Global Alliance for…
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Book review: „Infant Brain Development: Formation of the Mind and the Emergence of Consciousness“

This book by Professor Hugo Lagercrantz, gives a comprehensive, captivating and lively insight into the particularities of early childhood development and the consequences of brain disorders and malformations during different phases: before, during and after birth. Paediatrician and member of the EFCNI Scientific Advisory Board, Professor Lagercrantz, provides popular scientific explanations of early childhood brain development and combines them with clinical aspects. He shows how the child's brain develops in neonates and infants and explains the development of certain diseases.…
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Should infant and follow-on formula continue to contain arachidonic acid in the future?

A position paper of the European Academy of Paediatrics and the Child Health Foundation From February 2020 onwards, new standards for infant and follow-on formula will be in effect in the European Union (Commission Delegated Regulation 2016/127). The new standards stipulate the obligatory addition of docosahexaenoic acid (DHA, an omega-3 fatty acid) at concentrations 2-3 times higher than typically found in human milk and in DHA-containing infant formula used during the last 2 decades. However, there is no obligation to…
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Belgium EPIBEL cohort history

Patrick Van Reempts[1], Isabel De Groote[2], Liedewij Verhaege[3], Herbert Roeyers[4], Jo Lebeer[5] In the 1990ies information regarding the outcome of infants of extremely low gestational age was rare, and most of published outcome data health care professionals had to rely on for advising parents was based on birth weight (BW) rather than gestational age (GA). Many reports were not population based, were pooled data over several years of a small number of infants who were treated in different ways. EPIBEL…
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Evidence and Excellence in Perinatal Care – BAPM and EBNEO Conference 2019 in Newcastle

The British Association of Perinatal Medicine (BAPM) Annual Conference and Scientific Meeting, in partnership with Evidence-Based Neonatology (EBNEO), took place in Newcastle from 11-13 September 2019. Silke Mader presented in a very insightful way the European parent perspective drawing from experience. The Chairwoman of EFCNI pointed out the differences and inequalities in newborn care in European countries and referred to the long term consequences of…
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