Other content tagged: news
Angels for parents with empty arms
Guest article by Veronika Kmetóny Gazdová of our Slovakian partner from parent organisation Malíček. Preterm birth is a risk for both the woman and the baby. The fragility of life is seen especially in those families whose are leaving the hospital with empty arms. Malíček initiated a project to commemorate those lives as well as support families in their grief. Malíček donates the memorial called “little angels” to perinatal centres across Slovakia. The project builds on the activities of…
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Meet EFCNI at the jENS Congress
Fifth Congress of joint European Neonatal Societies welcomes you to Rome It is our pleasure and honour to be the co-organiser of the jENS Congress for the fifth time. This congress will always be a special one for us, as it brings together health professionals and parent representatives to share and learn from each other. We are looking forward to welcoming you to Rome at our booth and in our sessions and workshops. Mark your calendar so you won't miss…
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PICAPP – An app to support the development of preterm babies
Guest article by Livia Nagy, founder of “Right(s) beside you Association” (“Melletted a helyem Egyesület”) One in 11 newborns in Hungary is born preterm. Families are caught unprepared facing preterm birth and one of the main objectives of the “Right(s) beside you Association” (“Melletted a helyem Egyesület”) is to support parents in this unexpected life situation from the very beginning in the NICU. Lack of information but also fears from inappropriate internet materials further complicate the situation for parents. The…
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RSV Policy and Advocacy Workshop in Munich
From 23 to 25 June 2023, parent and patient representatives from all over the world came together to exchange and learn about effective policy and advocacy activities and tools using the example of RSV in young children. It was a pleasure for EFCNI to host this workshop on policy and advocacy in the field of RSV in Munich from 23 to 25 June 2023. The three days were packed with practical exercises, interesting group discussions and workshops to help the…
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Welcome, Paul, to Lithuania!
A guest article by Asta Speičytė-Radzevičienė, head of Lithuanian parent organisation Neišnešiotukas Last year, in 2022, about 1,200 preterm babies were born in Lithuania. However, the worldwide birth rate has been steadily declining for over 50 years. Every baby matters! Thanks to the collaboration with AmerisourceBergen, Lithuania received an innovative simulator Paul which precisely recreates a preterm 27-weeks-old baby. Such an innovative solution, which is created in Austria by SIMCharacters, contributes to the education…
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EFCNI auf der GNPI
EFCNI auf der GNPI 49 Jahrestagung der Gesellschaft für Neonatologie und Pädiatrische Intensivmedizin (GNPI) tagt in Hamburg mit vielseitigem und vielschichtigem Programm (see English article below) Mit 2000 Teilnehmenden verzeichnete die GNPI in diesem Jahr einen großen Zulauf von neonatologischen und pädiatrischen Fachkräften. Drei Tage lange wurde zu pflegerischen und wissenschaftlichen Themen referiert und diskutiert. Dabei ergänzten auch internationale Beiträge das Programm. EFCNI hatte die Möglichkeit aktiv zu dem interessanten Kongressprogramm beitragen zu können. So war EFCNI-Gründerin und Vorsitzende Silke…
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Guest article by Sandra Walther: Pre-eclampsia experience of an affected mother
Die deutsche Fassung finden Sie hier Unfortunately, until today, only very few women know enough about the dangerous pregnancy complication of pre-eclampsia, especially how and when they should act. Almost every woman knows someone who has experienced pre-eclampsia, but too little is said about the effects of this complication, the symptoms and the importance of not being afraid to consult a healthcare professional. Expectant mothers are not informed enough about the possible long-term health consequences. Medical professionals would also have…
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Gastbeitrag von Sandra Walther: Erfahrungen einer durch Präeklampsie betroffenen Mutter
Find the English article here Leider wissen bis heute die wenigsten Frauen über die gefährliche Schwangerschaftskomplikation Präeklampsie Bescheid, insbesondere wie und wann sie handeln sollten. Fast jede Frau kennt jemanden, der eine Präeklampsie erlebt hat, jedoch wird zu wenig darüber gesprochen, wie sich die Komplikation auswirkt, welche Beschwerden auftreten und wie wichtig es ist, keine Hemmungen zu haben zum Arzt zu gehen. Über die möglichen gesundheitlichen Spätfolgen werden die werdenden Mamas zu wenig aufgeklärt. Auch das medizinische Fachpersonal müsste bei…
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Transitional care in focus: Considering the needs of preterm babies and their families
Guest article by Lívia Nagy Bonnard, founding member of “Melletted a helyem Egyesület” – “Right(s) Beside You Association” in English – and a member of the Parent Advisory Board of EFCNI as well as a member of the Parent, Patient and Public Advisory Board of the ESCNH. 30th United European Gastroenterology Conference in Vienna The 30th United European Gastroenterology Conference took place in Vienna at the beginning of October 2022. The aim of the conference was to discuss and share research…
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13th International Conference on Kangaroo Mother Care in Madrid
From 21 to 24 November 2022, experts from all over the world came together to exchange knowledge regarding the latest Kangaroo Mother Care (KMC) practices. EFCNI was honoured to attend the conference on-site and was thrilled to meet old friends and new ones and to work together with the KMC community towards the best possible care for preterm born babies and their families. It was a pleasure to attend the 13th International Conference on Kangaroo Mother Care from 21 to…
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