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Other content tagged: news

Providing a Family Support Service during Coronavirus

A guest article by Alison Mc Nulty, Chief Executive Officer, Tinylife, Northern Ireland Every year in Northern Ireland 2000 babies are born too soon, too sick or too small spending anything from a few days, weeks or even months in one of the 7 neonatal units across the country. In 1988 Northern Ireland had the highest levels of baby mortality and morbidity across the developed world, so a group of parents and health…
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Virtual Education sessions for parents: An interview with Fabiana Bacchini

We interviewed Fabiana Bacchini from the parent organisation Canadian Premature Babies Foundation (CPBF) on their Virtual Education sessions, which include interviews with experts on topics regarding COVID-19 and prematurity, and their new COVIDCare program which offers two free counselling sessions to new parents in need.   Exchanging knowledge and sharing experience are always important but even more so in times of COVID-19. What do you offer to support your parent network in terms of exchange and support…
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The impact of COVID-19 on Parents and NICUs: An interview with Livia Nagy

The COVID-19 pandemic created new challenges for NICUs and parents of premature or sick newborns. Due to the risk of Coronavirus getting into the NICU, some units restricted the time parents were allowed to spend with their babies. But other units showed an advanced approach by letting mothers stay with their babies 24/7. We interviewed Livia Nagy from the parent organisation "Melletted a helyem Egyesület" in Hungary on the impact of COVID-19 on NICUs and parents.  …
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My key demand for newborn health – Strong advocates for the campaign “11 Months – 11 Topics”

In 2016 EFCNI launched the campaign “11 Months – 11 Topics”, to promote the implementation of the European Standards of Care for Newborn Health. Each month EFCNI shares different infographics, related publications, news, interviews, or guest articles on social media, in order to explain all eleven topics of the standards.  In the social media series “My Key Demand”, experts, parents and stakeholders point out what needs to be done to advance and implement the standards in Europe.  The new EFCNI…
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A new milestone – combining the knowledge of medical experts and parent representatives. Survive and Thrive: transforming care for every small and sick newborn is now available.

The WHO and UNICEF report is a milestone: it describes, key findings in aspects of newborn care, which require a high amount of attention. 94 experts from 16 countries worked on the report, amongst them EFCNI and colleagues from partnering parent organisations. Charlotte Bouvard from Sos Préma, Ilein Bolaños Gonzalez from Con Amor Venceras, Selina Bentoom from the African Foundation for Premature Babies & Neonatal Care – AFPNC and Livia Nagy from Melletted a helyem Egyesület, could actively contribute. The…
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Expert Roundtable on Human Milk Regulation in the EU

On 3 June, a group of interdisciplinary and international high-level experts in the field of human milk joined our digital roundtable on “Human Milk Regulation”. The aim of the meeting was to explore and discuss the need for a harmonised regulatory approach of human milk in the European Union. Silke Mader (Chairwoman EFCNI) and Professor Enrico Bertino (President EMBA) welcomed the group and thanked for the engagement to join the project, followed by an introduction to the work of EFCNI.…
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Webinar Series on Transforming care for newborns till August 2020 (WHO, UNICEF)

“Survive and Thrive: Transforming care for every small and sick newborn” is the title of the successful webinar series by the World Health Organization (WHO) and the United Nations Children’s Fund (UNICEF) in collaboration with The Network for Improving Quality of Care for Maternal, Newborn and Child health. Leading experts on neonatal health will share insights on key findings of the "Survive and Thrive: transforming care for every small and sick newborn" report. Furthermore, they will discuss the current situation of newborn…
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NeonaTEL: A call centre for parental support during the COVID-19 pandemic, established by the Romanian parent organisation Unu si Unu

Due to the COVID-19 pandemic parents are in need of special support. They have questions which should be answered on daily basis. EFCNIs partner parent organisation Unu si Unu established a call center to stay in touch with parents and parents-to-be and to help them to stay healthy and close to their children in the time of COVID-19. Corina Croitoru from Asociația Unu si Unu in Romania explained how the Call Center works and what is needed to set it up.…
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Current times ask for creative solutions! GLANCE Chair Committee has its first digital meeting

As the pandemic makes face to face meetings currently impossible, we were delighted to have the chance to e-meet the GLANCE Chair Committee digitally. “A global alliance, representing the stories and the voice of the parents was long overdue. We must include parents when we advocate for improvements in girls’, women’s and adolescents’ health.”, stated Chair Committee member Mary Kinney, Save the Children, US. EFCNI could…
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Act early! Screen early! Our campaign for pre-eclampsia awareness

May is the month of Pre-eclampsia awareness For the third time, EFCNI engages in the pre-eclampsia awareness month of May, by organising its international campaign Act early! Screen early! With this campaign, we want to play our part in ensuring a safe and healthy pregnancy. Advocating for early risk assessment in pregnancy is our mission and we are thrilled to have so many supporters on board this year! These times have been challenging, official launch dates had to be cancelled…
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