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Other content tagged: Partner activities

Putting prematurity on the agenda of the Brazilian Government

A guest article by Denise Suguitani, Executive Director of the Brazilian Parents of Preemies' Association Brazil is the 10th country in the world ranking of preterm birth. Since 2014 the nonprofit organisation 'Brazilian Parents of Preemies' Association', known as 'ONG Prematuridade.com' has been dedicating its work to address prematurity based on three pillars: raising awareness, prevention of preterm birth; permanent education to train health professionals, and advocating in the interests of families of preterm infants, acting in the area of…
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Preventing preterm births in Romania: new project by Asociatia Prematurilor

Asociatia Prematurilor, one of our collaboration partners in Romania, started a new project called ‘Caravan for pregnant women and mothers at risk’. The objective is to prevent preterm births in the country by providing preventive medical check-ups for pregnant women from disadvantaged areas in Romania. The initiative aims to evaluate and monitor pregnant women in ten disadvantaged localities in Romania, with a high infant mortality. Therefore, a mobile caravan accompanied by two doctors,…
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Funny Adventures of Twins: El Bebek Gul Bebek releases book to encourage parents and families of preterm children

Our partner organisation El Bebek Gul Bebek from Turkey released a new book called ‘Funny Adventures of Twins’. The book is a helpful resource for parents and families of preterm children, says Ilknur Okay, Chairwoman of El Bebek Gul Bebek: “Every preterm baby and their parents have a different, but generally difficult story. We, as parents who walked through this rocky path believe that with timely, proper care and love, the end of difficult times can be rewarding. ‘Funny Adventures…
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New book “A tiny little one” by Kevyt for parents of preterm children, families, friends, and relatives

The Finnish Association for Preemie Families, Kevyt, has published a book called Kevyt Pienokainen (A tiny little one). The book is meant for parents of preterm children, families, friends and relatives. It is also targeted for health care and education professionals, students, and researchers. The aim of the book is to give peer support and research-based information, as well as help to the professionals to understand the point of view of families. The book contains over 30 articles written by…
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Asociatia Prematurilor visit Baby, Parent and Family Centres in Munich and Passau

In April 2019, Diana Gamulescu and Adina Clapa from the Romanian association Asociatia Prematurilor spent two days at the hospitals of “Kliniken Dritter Orden gGmbH” in Munich and Passau to visit the Parents, Baby and Family Centres. Each hospital provides thoughtfully equipped and cosy rooms for families whose babies require intensive neonatal care for a longer period of time. The rooms are all equipped with modern yet homely furniture, bed and a private bathroom with a shower. Recreational rooms as…
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Vivere Onlus composed a song for parents with babies at the Neonatal Intensive Care Unit

Our Italian partner organisation Vivere onlus composed a song “io ti aspetto lo stesso”, to raise awareness for preterm birth. When a baby is born too soon or ill, the time ahead for parents can be stressful and emotionally challenging. This song reflects the feelings of a mother which are filled with anxiety but also trust and confidence in her child. The storyline of the song is based on a true story: Barbara Melotto gave birth to her son after…
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Psychological workshop for parents of preterm babies in Turkey

In 2018, our Turkish Partner Parent Organisation El Bebek gül Bebek conducted an online questionnaire with 500 parents of preterm born babies to gain more insight about their psychological state of mind. The outcome confirmed the previously gained experiences: 80% of mothers felt responsible that their baby was born preterm, making guilt the main feeling that parents experience. However, only the minority of parents seek psychological help. To improve mental health of parents whose babies are still in the neonatal…
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Happy anniversary TinyLife! Our Northern Irish partner organisation turned 30

„We may be Tiny but we aim to make a big impression“ Our heartfelt congrats to TinyLife, our partner organisation from Northern Ireland, for 30 years of committed and sustainable support for preterm babies and their families. Since 1988, TinyLife has been dedicated to reducing preterm birth, illness, disability and death in babies born in Northern Ireland. The charity was founded as NIMBA (Northern Ireland Mother & Baby Appeal), back then, they were the only charity for preterm and vulnerable…
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Towards the implementation of the standards in the Czech Republic

In April 2019, 20 coordinators of our partner organisation Nedoklubko from the Czech Republic came together for an intense working meeting in Škvorec/Prague. They worked on tasks like their "Mom for Mom" project and discussed possibilities on how to introduce the baby simulator doll “Paul” as a training tool in hospitals in the Czech Republic. One of the key agenda points was how to implement the European Standards of Care for Newborn Health in the Czech Republic. Several steps have…
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First Romanian follow-up centre for preterm children

One in 10 babies in Romania is born to soon. However, there are no public facilities that offer integrated follow-up and care to continuously monitor the babies after long hospitalisation. In 2018, Asociatia Prematurilor opened a Centre of Excellence in Prematurity in Bucharest, featuring free interdisciplinary evaluation services for preterm babies and their families. The beneficiaries come from all over the country to reach psychologists, neonatologists, experienced therapists or nutritionists. The services consist of: Language and communication assessments (language disorders,…
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