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Other content tagged: Partner activities

New book “A tiny little one” by Kevyt for parents of preterm children, families, friends, and relatives

The Finnish Association for Preemie Families, Kevyt, has published a book called Kevyt Pienokainen (A tiny little one). The book is meant for parents of preterm children, families, friends and relatives. It is also targeted for health care and education professionals, students, and researchers. The aim of the book is to give peer support and research-based information, as well as help to the professionals to understand the point of view of families. The book contains over 30 articles written by…
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Asociatia Prematurilor visit Baby, Parent and Family Centres in Munich and Passau

In April 2019, Diana Gamulescu and Adina Clapa from the Romanian association Asociatia Prematurilor spent two days at the hospitals of “Kliniken Dritter Orden gGmbH” in Munich and Passau to visit the Parents, Baby and Family Centres. Each hospital provides thoughtfully equipped and cosy rooms for families whose babies require intensive neonatal care for a longer period of time. The rooms are all equipped with modern yet homely furniture, bed and a private bathroom with a shower. Recreational rooms as…
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Vivere Onlus composed a song for parents with babies at the Neonatal Intensive Care Unit

Our Italian partner organisation Vivere onlus composed a song “io ti aspetto lo stesso”, to raise awareness for preterm birth. When a baby is born too soon or ill, the time ahead for parents can be stressful and emotionally challenging. This song reflects the feelings of a mother which are filled with anxiety but also trust and confidence in her child. The storyline of the song is based on a true story: Barbara Melotto gave birth to her son after…
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Psychological workshop for parents of preterm babies in Turkey

In 2018, our Turkish Partner Parent Organisation El Bebek gül Bebek conducted an online questionnaire with 500 parents of preterm born babies to gain more insight about their psychological state of mind. The outcome confirmed the previously gained experiences: 80% of mothers felt responsible that their baby was born preterm, making guilt the main feeling that parents experience. However, only the minority of parents seek psychological help. To improve mental health of parents whose babies are still in the neonatal…
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Happy anniversary TinyLife! Our Northern Irish partner organisation turned 30

„We may be Tiny but we aim to make a big impression“ Our heartfelt congrats to TinyLife, our partner organisation from Northern Ireland, for 30 years of committed and sustainable support for preterm babies and their families. Since 1988, TinyLife has been dedicated to reducing preterm birth, illness, disability and death in babies born in Northern Ireland. The charity was founded as NIMBA (Northern Ireland Mother & Baby Appeal), back then, they were the only charity for preterm and vulnerable…
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Towards the implementation of the standards in the Czech Republic

In April 2019, 20 coordinators of our partner organisation Nedoklubko from the Czech Republic came together for an intense working meeting in Škvorec/Prague. They worked on tasks like their "Mom for Mom" project and discussed possibilities on how to introduce the baby simulator doll “Paul” as a training tool in hospitals in the Czech Republic. One of the key agenda points was how to implement the European Standards of Care for Newborn Health in the Czech Republic. Several steps have…
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First Romanian follow-up centre for preterm children

One in 10 babies in Romania is born to soon. However, there are no public facilities that offer integrated follow-up and care to continuously monitor the babies after long hospitalisation. In 2018, Asociatia Prematurilor opened a Centre of Excellence in Prematurity in Bucharest, featuring free interdisciplinary evaluation services for preterm babies and their families. The beneficiaries come from all over the country to reach psychologists, neonatologists, experienced therapists or nutritionists. The services consist of: Language and communication assessments (language disorders,…
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Standards of Care: How Norway implements high-quality care

Oslo, December 2018 On the occasion of their 30th anniversary, our Norwegian partner parent organisation Prematurforeningen, chaired a seminar at Rikshospitalet, Oslo, as a national follow-up of the launch of the European Standards of Care for Newborn Health and the Call to Action in Brussels, one month earlier. In only a few months, the organisation managed to reach out to well-known national experts from different disciplines to evaluate care procedures in perinatal and neonatal health on national level and prepared…
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Ukrainian photo exhibition «Dads in Focus»: The important role of fathers in raising a child

On November 17th, 2018, on World Prematurity Day, Early Birds, the Ukrainian Preemie Parent Association opened the photo exhibition «Dads in Focus». This event is supported by the Ministry of Health of Ukraine, the Association of Neonatologists of Ukraine, as well as by the main perinatal centres and maternity hospitals. The exhibition will be open until December 16, 2018. For every child, it is very important that not only the mother but also the father cares for its child in…
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Developmental care for little patients – FINE trainings in Romania

A guest article by Corina Croitoru, President of the Association Unu și Unu Preterm babies, and ill newborns are properly treated from the medical point of view, but, the human dimension is often neglected. They are ‘just’ patients and the parents are ‘just’ visitors. By supporting FINE training in Romanian hospitals, Unu si Unu Association aims to change this situation.  The aim: “Through this project we want to support the babies and their parents. At birth, both the baby and the mother…
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