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Other content tagged: parent organisation

15 minutes is NOT OK – Irish parent organisation campaigns against the restriction of parental access to Neonatal Intensive Care Units (NICU)

Due to the COVID-19 pandemic Neonatal Intensive Care Units (NICU) have restricted or even abolished the time parents can spend in the NICU with their baby. EFCNIs partner parent organisation Irish Neonatal Health Alliance (INHA) recently launched the campaign “15 minutes is NOT OK” which raises awareness for an issue that will have long-term consequences for both parents and babies. Mandy Daly, founder of INHA, told us how this campaign was developed. Mrs…
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Supporting parents during the COVID-19 pandemic – Australian parent organisation shares best practice in reaching out digitally

Across the world parents of premature babies are deeply affected by the COVID-19 pandemic. The hospitals’ safety measures taken to protect against COVID-19 often separate parents form their newborns, even when the whole family is healthy. Worldwide parent organisations do their best in order to support those families in need. We talked to Kylie Pussell, CEO and Co-Founder of the Miracle Babies Foundation, about how the current situation changed the way the foundation…
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Unseen Power –TED talk about the power of parent organisations

Oleksandra Balyasna, Founder and Chairwoman of our Ukrainian partnering parent organisation Early Birds / Ранні пташки, was a speaker at the renown TED Talks. Under the motto: ‘UnSeen Power – how to change the world through our decision and actions’, 100 attendees joined the regional TEDx event at the Bel etage Concert Hall in Kyiv, end of October. TED is a non-profit organisation devoted to spreading ideas in the form of short, powerful talks. TED was initiated in 1984 as…
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All things neonatal: professionals and parent representatives debate neonatal care in Hungary

A guest article by Livia Nagy The 17th Congress of the Hungarian Perinatology Society was organized in Siófok, Hungary by the Department of Obstetrics and Gynaecology and the newly-founded Department Group of Neonatology at Semmelweis University. On the first day of the conference, numerous insightful high-quality presentations were shown to the audience. The presentation by Anikó Kussinszky (Office of the Commissioner for Fundamental Rights, Head of Department of Equal Opportunities and Children's Rights) was certainly a highlight in the session…
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Important milestones for preterm babies and their parents in the Slovak Republic

A guest article by Iveta Jančoková from the Slovakian parent organisation “maliček” In the Slovak Republic it is not very common that parent representatives have the opportunity to present their cause in an expert forum for medical staff, therefore it was a great honour for us and “maliček” to be invited to talk about the parental view in preterm health during the international congress “Martin's Days 2019”, taking place in Martin. At this conference we took the opportunity to present…
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Ukraine: All things neonatal

In October, our partners from the Ukrainian Preemie Parent Association "Ранні пташки" (Early Birds), the Association of Neonatologists of Ukraine, the "Institute of Pediatrics, Obstetrics and Gynecology of NAMS of Ukraine", DP "IPAG NAMS of Ukraine" and Shupyk National Medical Academy of Postgraduate Education, organised the international conference "Modern approaches to rehabilitation of premature babies and children at an early age: Ukrainian realities" in Kiev, Ukraine. With 350 participants the conference was a big success and a great opportunity for…
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