Other content tagged: rare diseases

Canada’s Rare Disease Strategy – 5th Anniversary

Interview with Durhane Wong-Rieger, PhD, President & CEO, Canadian Organization for Rare Disorders and Chair, Rare Disease International Dr Wong-Rieger, what was the idea behind your strategy and what was the starting point? Before we, as the Canadian Organization for Rare Disorders, could bring people together to consider a national “rare disease strategy”, we had to answer the question, “what do rare diseases have in common?”  What could we possibly offer patients…
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Legislation on medicines for children and rare diseases open for public consulation

An evaluation by the European Commission covers the legislation on medicines for special purposes, in particular medicines for children and medicines to treat rare diseases. The evaluation will assess to which extent the EU legislation is efficient and effective and considers whether it is fit for purpose in the light of developments in the area of pharmaceuticals. It will look in particular in the impact of the incentives introduced for research, development and marketing, for these specific medicines. The public consultation…
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