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Other content tagged: palliative care

Exploring Parental Bereavement Support in the Neonatal Intensive Care Unit (NICU)

Posted on 10 July 2023
A recent systematic review from Canada explored parental experiences and bereavement in the NICU, shedding light on the challenges of infant loss. Healthcare professionals are crucial in supporting parents, which can be done by facilitating meaningful moments and using clear communication. Strategies like shared decision-making, parental involvement in activities, and bonding time were also found to help with grief. Other resources like spiritual care and counselling are also essential. Understanding parents' needs in neonatal loss…
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Compassionate care for sick or preterm newborns at the end of life

Posted on 01 July 2022
Providing palliative care for sick or preterm newborns and their parents/caregivers is a major challenge and is in strong contrast to ‘usual’ care. Healthcare professionals should make decisions in the best interest of the child while weighing the continuation or omission of treatments, accompany the parents in this extremely difficult situation, and allowing as much time as possible between child and parents/caregivers. Verbalising and showing one’s own feelings, perceiving parents as experts and considering…
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Perinatal palliative care: Giving parents support when a pregnancy goes wrong

Posted on 23 July 2019
Interview with Dr Fauzia Paize Perinatal palliative care (PPC) is a fairly new subspecialty within palliative care. What are the main ideas behind this new concept? Dr Paize: Healthcare professionals working in antenatal and neonatal services are accustomed to providing babies and families with sophisticated expert care using high levels of technical skills, communication and knowledge. However, there is a growing need for them to provide a palliative care approach throughout the pathways, which means a shifting of emphasis, ensuring…
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Lighthouse Project: Palliative Care and grief counselling in Peri- und Neonatology

Posted on 30 July 2018
New guiding principles published - a remarkable project in the field of "Ethical decision-making and palliative care" a guest article by Katarina Eglin from the German Federal association "Das frühgeborene Kind" e.V. Terminal care and grief counselling always act as part at neonatal care facilities when children are either born very preterm or seriously ill. However, so far there wasn’t a suitable recommendation for action in the German speaking countries, which provides guidance for the healthcare team to deal professionally…
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Lighthouse Project: the neonatal butterfly project – support for grieving parents and guidance for health professionals

Posted on 27 July 2018
July is the month where we shed light on the complex and sensitive topic of ethical decision making and palliative care in neonatology and obstetrics. One outstanding project as part of this monthly topic, is the pioneer work of the neonatal butterfly project, a group of nurses, doctors and other academics, working with parents who have experienced the loss of their baby on a neonatal unit. However, the project does not…
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