Alliance of Bulgarian Midwives (ABM)
The Alliance’s members believe that providing continuity of care is one of the strongest determinants of positive results in maternal and child health care. We believe women must be provided with opportunities to give birth to healthy babies in a safe, friendly, respectful and satisfying environment regardless of place of birth.
The Alliance’s position on introducing the midwifery model of care is as follows:
- The Alliance supports every woman who wants to have access to midwifery care during their pregnancy, birth and postpartum.
- The Alliance supports women’s and their partners’ right to childbirth preparation and education and encourages them in their choices considering midwives to be the most suitable provider for this education and preparation.
- The Alliance trusts all women and their partners should have access to education on pregnancy, birth, and postpartum
- The Alliance supports respecting women’s rights in childbirth.
- Our strategic plan for strengthening and development would aim at:
- Answering women’s needs in the field of midwifery care and respecting their reproductive rights
- Actively contributing to improving perinatal and pre-natal care
Improving access to prenatal care while respecting rights to personal freedom and personal independence.
- Putting the woman in the centre of all activities on sexual and reproductive health
- Assisting in implementing WHO’s (World Health Organization) and EU’s standards, as well as in implementing international best practices in midwifery
- Informing current and future midwives on best practices in midwifery care and their implementation in Bulgaria according to current legal framework
- Organizing and performing qualification training and continuous education courses for midwives
- Working in cooperation with other organizations and institutions to develop common positions, legal initiatives, joint statements and joint actions towards competent authorities and interested parties in Bulgaria, as well as with international partners in midwifery practice and training
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Alliance for Childhood
The Alliance for Childhood promotes policies and practices that support children’s healthy development, love of learning, and joy in living. Our public education campaigns bring to light both the promise and the vulnerability of childhood. We act for the sake of the children themselves and for a more just, democratic, and ecologically responsible future.
ALL Ladies League (ALL)
ALL Ladies League (ALL) is the world’s largest international network of women from across the world and only such global women’s chamber connecting women of inspiration from ALL countries and cultures. It is a movement for the Welfare, Wealth, and Wellbeing of ALL. With 30,000 members across 110 countries (and growing), ALL is like an “Internet of Women,” an all-inclusive worldwide web of women’s leadership, friendship and entrepreneurship in ALL spheres & sectors, at ALL levels and for ALL sections of society & cultures. The acronym ALL stands for our positive spirit and inclusive culture toward empowering one and ALL through the all-embracing power of women’s leadership, often characterised by care, courage, resilience, community responsibility and belief in collective action. Through its unique culture and massive connections, ALL fosters a powerful energy for building bridges, celebrating diversity and energising business and creative collaborations beyond borders and boundaries. Women Economic Forum is part of the ALL Ladies League (ALL).
Ashoka is the largest network of social entrepreneurs worldwide, with nearly 3,000 Ashoka Fellows in 70 countries putting their system changing ideas into practice on a global scale. Founded by Bill Drayton in 1980, Ashoka has provided start-up financing, professional support services, and connections to a global network across the business and social sectors, and a platform for people dedicated to changing the world. Ashoka launched the field of social entrepreneurship and has activated multi-sector partners across the world who increasingly look to entrepreneurial talent and new ideas to solve social problems.
Ashoka Fellows remain the core of our community, and their insights show us how the world is moving and what is needed next. Ashoka’s mission has evolved beyond catalyzing individual entrepreneurs to enabling an “everyone a changemaker” world. This means equipping more people – including young people – with the skillset and a connection to purpose so that they can contribute ideas and effectively solve problems at whatever scale is needed in their family, community, city, workplace, field, industry, country.
Ausbildungszentrum Laktation und Stillen
The training center for lactation and breast-feeding was established in 1994 in cooperation with Leipzig University for Women and offers qualified service in the medical care and advisory sector.
We encourage and support regular information exchange and networking of all professionals dealing with expectant or young families. (Pediatric nurses, doctors, midwives, psychologists, physiotherapists, occupational therapists, speech therapists, social workers, health educators, chaplains and lactation consultants).
Developmental support for families with preterm infants or newborns with illnesses
We offer comprehensive training courses for people professionally involved with preterm infants or newborn infants with illnesses and their families. The 16-day training consists of five complementary modules which can also be assigned individually. Participants are thus prepared for their practical and consultancy work in hospitals and private practice.
After participating in all five modules and a written thesis, a final certificate is issued.
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Of some 700 000 annual newborns in Germany, almost 60 000 are preterm. Preterm delivery is not only a major worry for families and newborns, it generates significant costs.
BabyCare is a programme to reduce preterm deliveries targeting all risk factors interventable. It was developed in 2000 by renowned obstetricians, midwives, and experts in prevention and health promotion. The success is evident; regular evaluations are demonstrating an overall reduction in preterm births by 25%.
The programme comprises a book covering all the issues arising in pregnancy, a self-administered questionnaire, individual health and nutritional recommendations based on the questionnaire responses, micronutrient optimised recipes, individual advice on medication during pregnancy and a relaxation CD with especially composed music for stress reduction.
After sending the questionnaire to the BabyCare-Team the participants get an individual analysis with tips for a healthy pregnancy and advices about the preterm birth risk.
With regard to the costs of preterm birth and the costs of the programme, the BabyCare programme is evidently highly cost-effective.
For more information about the prevention programme for pregnant woman – BabyCare – please visit the website www.baby-care.de. A description of the programme in English is available as well.
Berufsverband der Kinder- und Jugendärzte e. V. (BVKJ)
The Berufsverband der Kinder- und Jugendärzte e. V. (BVKJ) is the professional interest group of paediatricians in Germany. 12,000 paediatricians from hospitals, medical practices and public health services belong to the association.
The BVKJ is committed to create equal opportunities and the best possible health care for children and adolescents in Germany. Essential parts of the interest group’s work are to maintain the conditions laid down in the United Nations Convention on the Rights of the Child and the right of each child to physical and psychological integrity.
The interest group develops basic principles, content and extent of practice of medical professionals for children and adolescents and it promotes their practical implementation. As part of a comprehensive training programme the BVKJ ensures a contemporary level of knowledge of children’s doctors, doctors in training and professions of assistants. With this activities members of BVKJ are always involved close medical and quality of the care of preterm and term born infants. These activities enable members of BVKJ to be experts for the high-quality medical care system for preterm and term born infants.
Berufsverband Kinderkrankenpflege Österreich (BKKÖ)
The professional society “Berufsverband Kinderkrankenpflege Österreich“ (BKKÖ) was founded in 1997, in order to maintain a customised basic training for child and youth care facilities with the overall goal to guarantee and improve the care and support of children and young adults, as well as their families.
BKKÖ provides its professional expertise in this field to achieve new ways of development in training and observes the adherence of the rights of children and adolescents, especially the supervision by adequately trained care personnel, both intra- and extramurally.
Offering congresses and events for experts on a regular basis plays an essential role in generating knowledge for all professionals. Their contents are driven by professional competence and results from the sciences and research of medical care.
Further objectives amongst others are to advance the development of family health care in order to strengthen patient-centred care, and the improvement of their health.
BKKÖ is generating up to date information by cooperating with healthcare institutions and social services both nationally and internationally, and increases the achievement of objectives with their outreach.
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Bildungsinstitut Fachbereiche Gesundheitswesen (B.F.G.)
B.F.G. is based in Siegen, Germany and deals with the further education and training of hospital consulting and science management within the German health care system since 1994.
More than 55,000 participants have since then attended B.F.G. events. B.F.G. is one of the leading free providers of this kind in Germany, with a main focus on the innovative knowledge within children’s nursing, midwifery and preterm care.
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Bundesverband Bunter Kreis e.V.
The Bundesverband Bunter Kreis e.V. incorporates around 80 aftercare facilities. These establishments are distributed all over Germany to support families with seriously and chronically ill children after their hospital stays.
Preterm and high-risk births or the diagnosis of a severe and / or chronic disease often trigger feelings such as fear, guilt, anger, helplessness, and result in a fundamental overstraining. Apart from the exhausting situation, affected families are confronted with the confusing health care system, complex therapies, the reorganisation of their work and family life as well as bureaucracy.
The aftercare facilities of the Bundesverband Bunter Kreis e.V. support these families with practical support via nurses specialised in follow-up care in order to support the successful reintegration of the sick child, the siblings and the whole family in everyday life. The aftercare services are free of charge for the families. The main part of the services are paid for by health insurance companies, the basis for it being the nationwide aftercare law for services and their remuneration. The remainder is financed via grants, donations, sponsorships and subsidies.
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Club “28 petel”
Club “28 petel” provides Kazakhstan premature infants’ resuscitation departments with knitted socks for the babies. Wool socks are not just simple our warm support. Wool socks stimulate the nerve endings of baby’s legs. On current days “Club 28 petel” exists in 16 cities of Kazakhstan. The volunteers meet once or two times per month to do knitted socks. Usually we do about 50 – 200 knitted socks for 2 months.
In 2014 Club “28 petel” received an official status of the charitable fund. I n the same year our club participated in the project of the PRI “Strengthening the health and social services in women’s and children’s prisons of Kazakhstan”. As a result, Atyrau prisoned women become our club’s participants. Our club has followers in Kyrgyzstan, Ukraine, Dubai. In 2015 our club sent a small batch of knitted things to Africa, Pakistan and the United States.
In 2014 year our club was nominated as “The best volunteer of year” in Kazakhstan.
Since 2014 our club did 19063 knitted things for premature infants.
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Confederation of Family Organisations in the European Union (COFACE)
The Confederation of Family Organisations in the European Union (COFACE) is a pluralistic organisation, which aims at promoting family policy, solidarity between generations and the interests of children within the European Union.
COFACE advocates a policy of non-discrimination and of equal opportunities between persons and between family forms, and specifically supports policies aiming at equality between women and men. COFACE was originally founded in 1958. Since then, it has been linking together family organisations from all over Europe to discuss and work on issues such as balancing work and family life, children’s wellbeing, solidarity between generations, migrant families, disabled and dependent persons, gender equality, education, parenting, health issues, consumer affairs, etc.
With more than 50 member organisations in the Member States of the European Union, COFACE gives a voice to many millions of families at EU level.
Council of International Neonatal Nurses (COINN)
The Council of International Neonatal Nurses (COINN) is an exciting organization that represents nurses who specialize in the care of newborn infants and their families. COINN is an important link in the growing international community of neonatal nurses and is a much needed resource for nurses that want to form a national or local organization, create guidelines for care or professional standards or just want advice on neonatal nursing issues.
Deutsche Gesellschaft für Pränatal- und Geburtsmedizin (DGPGM)
Prenatal and obstetric medicine is an important, extremely fast-growing sub-discipline of obstetrics. The aim of DGPGM, the German Association for prenatal care and obstetrics, is the representation of this field in clinical practice, hospital settings and research.
In the interest of mothers, children, and families, prenatal and obstetric medicine shall receive promotion according to the international progress made in the field.
The DGPGM aims to impart new findings from fundamental and clinical research by organising scientific congresses, conferences, training events and the like. In addition, they support professional autonomy of prenatal and obstetric medicine, without questioning the unity of the whole discipline.
Prenatal and obstetric medicine is composed of professional responsibility for mother and child and ranges from preconceptional counselling, over pregnancy and childbirth, to the first days following the delivery. The latter includes the close collaboration with professionals working in neonatology.
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Deutsche Gesellschaft für Perinatale Medizin (DGPM)
DGPM, the German Society for Perinatal Medicine, is the oldest and by far biggest society for the interdisciplinary field of perinatal medicine in the German speaking region. Prof. Erich Saling, pioneer in perinatal medicine, founded the society in Berlin. That is where every two years, the DGPM Congresses take place.
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Deutsche Stiftung Kranke Neugeborene (DSKN)
The German Foundation for Sick Newborns (Deutsche Stiftung Kranke Neugeborene) is a charitable foundation which was founded in 2014 and is currently under the patronage of the prime minister of Saxony.
The general aim of DSKN is to improve the provision of health care not only of preterm infants but also sick newborns. Despite of the medical progress regarding therapy of the vulnerable group, special needs of sick newborns often remain unsatisfied and potentials for treatment are not fully exploited.
Therefore, the DSKN promotes and supports projects to help sick newborns in Germany and improve their quality of life, with a special focus on the following 7 aims:
- Providing an optimal start in the delivery room;
- Improving inter-sectoral and inter-professional cooperation within a certain geographical region;
- Optimizing care after the initial hospital treatment;
- Improving future care of sick newborns by supporting the translation from bench to bedside;
- Improving long-term development by strengthening parental competencies;
- Improving quality of care by supporting clinical bench-mark initiatives;
- Supporting the discourse on how to develop the future for the next generation.
To achieve these goals DSKN does not only financially support different projects that are close to clinical application, but does also serve as a voice of sick newborns in political discussions. The annual “Forum on the future” offers the opportunity for a discussion with political decision makers, health care providers, medical professionals, parents and others involved in the care of sick newborns.
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Early Nutrition eAcademy (ENeA)
The Early Nutrition eAcademy (ENeA) is an e-learning co-operation initiated by the Early Nutrition Academy (ENA) and the Dr. von Hauner Children’s Hospital at the LMU Medical Center Munich.
European Board & College of Obstetrics and Gynaecology (EBCOG)
EBCOG is the Board and College of the Obstetrics and Gynaecology Section of the Union Européenne des Medécins Spécialistes (UEMS). EBCOG began in 1996 as a fusion between the European Board of Gynaecology and Obstetrics (EBGO) and the European College of Obstetrics and Gynaecology (ECOG). EBCOG is an organisation made up of 36 countries and based in Brussels. Our objective is to improve the health of women and their babies by promoting the highest possible standards of care in all European countries. We bring together high-level professionals from the obstetrics and gynaecology field from all our member countries.
European Parliamentary Forum on Population and Development (EPF)
EPF is a network of members of parliaments from across Europe who are committed to protecting the sexual and reproductive health of the world’s most vulnerable people, both at home and overseas.
Erich Saling-Institute of Perinatal Medicine
The Erich-Saling institute is a supra-regional consultation center with emphasis on the prevention of premature births. The non-profit institution contributes significantly to the improvement of prenatal care. Since 2000 the work of the institute has been financed exclusively from private donations and support.
The main focus of the institute lays in:
- Prematurity-Prevention-Program and Self-Care-Program for pregnant women.
- Further development of existing steps for the prevention of premature births – including national and international cooperation
- Public relation activities concerning the significance and possibilities of preventing premature births, such as in women’ and family journals and magazines
- Consultation of pregnant women preferably in German speaking countries with a history of miscarriages and premature births
- Information and consultation for physicians, gynecologists, midwives and pharmacies (chemist’s shops)
- Lobbying for example with health care insurances and professional organizations in order to make self-care available to all pregnant women.
Europe Against Infant Brain Injury (EURAIBI)
EURAIBI’s aim is prevention, treatment and study of the suffering brain in the fetus and newborn, by sharing the experiences of European centers of excellence in specific areas: pathophysiology of fetal central nervous system, maternal-fetal relationship, intrauterine environment, diagnostic imaging, delivery room conundrums, developmental care, pain in the fetus and newborn. EURAIBI is particularly devoted to maternal diseases in pregnancy, intrauterine infections, asphyxia, and prenatal and postnatal treatment of infants at high risk of brain damage.
European Association of Perinatal Medicine (EAPM)
The aim of the European Association of Perinatal Medicine is to bring together groups and individuals in a European organization to promote the science of perinatal and maternal medicine for the benefit of mothers and their children. In this context the EAPM organizes a large European congress every two years, and together with its working groups national and international educational courses and meetings. The EAPM stimulates international research projects, develops guidelines and brings site-visits to perinatal units to accredit teaching and training in perinatology.
European Critical Care Foundation (ECCF)
Over the last 20 years there has been great improvement in survival from accidents, from heart disease and from infectious disease. Babies born small survive and science offers ever greater possibilities to improve the human condition. However, as the potential to help the critically ill patient increases, so do the dilemmas in applying that potential.
Decisions made by doctors to aid the survival of critically ill patients do not only depend on the state of medical knowledge at the time, but also on a host of conditions often out of the doctor’s control. Many important forces which determine the doctor’s decisions are not obvious and often have complex interactions. They may be financial, cultural, political, geographical, ethical, philosophical and even policies made in areas far away from medicine, for such as transport.
The European Critical Care Foundation (ECCF) is a pioneering new foundation established to initiate independent research into complex issues like these, with the objective of improving the care of patients suffering from critical illnesses across Europe.
In a ground breaking new approach, the ECCF brings together experts from the fields of medicine, law, philosophy, public policy and science to identify and address the issues that determine the survival and care of critically ill patients. ECCF focuses not on doctors and treatments, but on patients and results.
European research consortium Neobrain
NEOBRAIN brings together small and medium sized enterprises (SMEs), industry and academic groups devoted to the diagnosis, management, and neuroprotection in newborns with perinatal brain damage. The focus of NEOBRAIN is the prevention of brain damage mainly observed in preterm newborns.
European Society of Paediatric and Neonatal Intensive Care (ESPNIC)
The European Society of Paediatric and Neonatal Intensive Care (ESPNIC), is a non-for- profit organisation dedicated to the care of the critically ill children and newborns. Our society is comprised of Nurses and Doctors who are committed to share knowledge and improve the quality of paediatric and neonatal intensive care at the European and international level, and devoted to highly promoting multidisciplinary collaboration among paediatric, neonatal and adult intensivists as we all as nurses and meeting the needs of members, giving them a voice within the European and international context.
In this endeavour, ESPNIC is dedicated to promoting and advancing the art and science of paediatric and neonatal intensive care, and raising awareness amongst professionals in the field, European and International organisations, through a wide range of activities including annual congresses, training programmes, teaching courses, and network opportunities with the leading experts in the fields of PICU & NICU.
The Society provides the opportunity to Doctors, Nurses and other allied healthcare professionals to influence their specialty at a national and international level by facilitating a strong networking platform within a multidisciplinary environment at a national and international level.
European Society for Paediatric Gastroenterology Hepatology and Nutrition (ESPGHAN)
The European Society for Paediatric Gastroenterology Hepatology and Nutrition (ESPGHAN) is a multi-professional organisation whose aim is to promote the health of children with special attention to the gastrointestinal tract, liver and nutritional status, through knowledge creation, the dissemination of science based information, the promotion of best practice in the delivery of care and the provision of high quality education for paediatric gastroenterology, hepatology and nutrition professionals in Europe and beyond.
European Society of Paediatric Research (ESPR)
The European Society for Paediatric Research (ESPR) takes seriously its role as a voice in Europe promoting paediatric research and post-graduate training. As such, it offers a high standard of ethics, a well-structured constitution, superb membership benefits (including affiliate membership of the Society for Pediatric Research), and a first-rate, annual paediatric congress.
ESPR aims to promote paediatric research in Europe and encourage collaboration between different specialised fields of paediatrics to maintain paediatrics as a unified, scientifically orientated discipline.
The EURO-PERISTAT project’s goal has been to develop valid and reliable indicators that can be used for monitoring and evaluating perinatal health in the EU. The project began in 1999 as part of the Health Monitoring Programme and has continued into a third phase, with the ultimate aim of producing a European Perinatal Health Report and establishing a sustainable system for reporting perinatal health indicators.
Fetal Medicine Foundation (FMF)
The Fetal Medicine Foundation (FMF) is a Registered Charity that aims to improve the health of pregnant women and their babies through research and training in fetal medicine. It is supported by The Fetal Medicine Centre and by private donations. The Foundation, with the support of an international group of experts, has introduced an educational program both for healthcare professionals and parents and a series of certificates of competence in different aspects of fetal medicine. Founder and Director of both the Fetal Medicine Foundation and the Fetal Medicine Center is Professor Kypros Nicolaides.
Foundation for Premature Infants, Inc.
The mission of Foundation for Premature Infants is to advocate for the right of all premature infants to be cared for in a developmentally supportive manner. They want to ensure that the premature infant Bill of Rights is the standard of care for all babies born prematurely, 24 hours per day, 365 days per year, on all shifts, in every Neonatal Intensive Care Unit in the world.
German Neonatal Network (GNN)
The German Neonatal Network (GNN) analyses, within a longitudinal study, which factors can influence the long-term upgrowth of prematural infants in a positive way. The GNN is situated in the university hospital of Lübeck having a research association of 40 clinics from all over Germany so far.
Global Breastfeeding Initiative
The Global Breastfeeding Initiative is a long term public health campaign for increased awareness in the society to support breastfeeding for all infants. The project was developed by the EiP Institute (www.excellence-in-paediatrics.org) in order to inform and educate about the importance of breastfeeding infants for the long-term health and wellbeing of the child. The Global Breastfeeding Initiative aims to develop a global outreach strategy that can identify and address real-life barriers to breastfeeding and thus make a real difference country by country, at a national level. A multidisciplinary educational approach ensures the effective engagement of parents, paediatricians, and policymakers.
Harl.e.kin – smooth transition between hospital and home for preterm babies in Bavaria
Many families with a preterm baby experience the first weeks or months of the baby’s new life in hospital. When they are finally allowed to go home, the time after their baby’s hospital discharge is a mixture of happiness, anxiety and exhaustion.
That’s where Harl.e.kin comes into play! Harl.e.kin is a very low-threshold programme that supports these families in transition between hospital and home. Its major aim is to strengthen the parents’ competence to care for the child at home. Two specialists, a familiar paediatric nurse from the hospital and a trained “early support assistant” who is an expert for early infantile development visit the family at home.
Since 2003, today in 18 facilities, Harlekin is continuing its successful way of preventing developmental risks of preterms.
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Healthy Newborn Network (HNN)
The Healthy Newborn Network (HNN) is a partnership of organizations and individual members committed to improving newborn health around the world. HNN was launched in 2010 as an initiative of Save the Children’s Saving Newborn Lives (SNL) Program. SNL serves as the secretariat of HNN and takes primary responsibility for maintaining the HNN website, including compiling resources and content. Active participation, including posting resources, blogs, and comments is encouraged.
HNN connects advocates around the world and provides a platform for discussions and interactions on a vast range of newborn and maternal health topics. In addition, the HNN boasts a common library of newborn health resources, featuring the latest in newborn health research, news, resources, events, articles, success stories and more from HNN Partners around the world.
International Federation of Gynecology and Obstetrics (FIGO)
The International Federation of Gynecology and Obstetrics (FIGO) is the only worldwide organisation that groups obstetricians and gynecologists. It has member associations in 125 countries/territories. Its vision is that women of the world achieve the highest possible standards of physical, mental, reproductive and sexual health and wellbeing throughout their lives. Its mission is the improvement of women’s health and rights, and the reduction of disparities in healthcare available to women and newborns, as well as to advance the science and practice of obstetrics and gynecology. The organisation pursues its mission through advocacy, programmatic activities, capacity strengthening of member associations, education and training.
IPOKRaTES, an acronym for International Postgraduate Organisation for Knowledgetransfer, Research and Teaching Excellent Students, is a non-governmental, non-profit and charitable, registered academic society which offers postgraduate seminars mainly in pediatrics and neonatology, worldwide.
IPOKRaTES seminars provide high-quality education in form of small group seminars that enables professionals to keep abreast of the most recent developments, and offer participants the opportunity to discuss practical problems or scientific issues personally with international experts.
Maternal and Child Health and Development Research Network (SAMID)
The Spanish Research Network on Maternal and Child Health and Development (SAMID) has the mission of generating high quality scientific knowledge in maternal and child health. SAMID Network comprises 12 research groups which main objective is to promote translational research focused on pregnant women, newborn and infant stage until the end of adolescence when reaches its full development.
The overall goal of the network is to improve maternal and child health by strengthening the cooperation between the fields of obstetrics, neonatology, pediatrics, nutrition, intensive care, and experimental research.
Our objective is to ensure your well-being.
The health and well-being of mothers, fathers and their children is something that really matters to us, and indeed it is this that has been the focal point of our non-profit work for over twenty years now.
We know how exhausting it can be to cope with a family’s needs each and every day. Parents often have to manage the demands made on them by their career, their children, the housework and their marriage all at the same time. That can create conflicts and result in all of the family members feeling out of their depth. If, on top of all this, illness hits the family, if financial difficulties arise or if there are problems with one’s partner, then this may not just take its toll on family life as a whole, but can swiftly lead to health problems or even actual illness. Nor is the damage limited to mothers and fathers – children, too, can be affected.
Unresolved difficulties balloon until all at once they seem to have assumed mountainous, insurmountable dimensions. Before, however, the burden becomes utterly insupportable, there are things that can be done – and this is where we want to help you. For the fact is that a mother/father & child cure can work wonders in this situation. Years of experience have shown us the lasting benefits that a short break can create for the whole family situation, if it is accompanied by the kind of professional help provided by a mother/father & child cure.
This is why we maintain a nationwide network of advice centres that will help you to apply for this kind of cure and ensure you find the spa facility which meets your individual needs.
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Neven Subotic Stiftung
We want to permanently improve the lives of people, especially children and adolescents in the rural areas of Ethiopia while gaining access to clean water, sanitation and hygiene (WASH). As a result, more children can attend school since they are no longer kept away from school due to sickness. This is the fundamental precondition for a self-determined and dignified future.
NIDCAP Federation International (NFI)
The NIDCAP Federation International, NFI, promotes the Newborn Individualized Developmental Care and Assessment Program (NIDCAP) in hospitals and encourages its use nationally and internationally to support the growth and development of premature infants and to improve the quality of their care and the support for their families.
Formed in 2001, the NFI is a private, non-profit, charitable organisation committed to providing the highest quality of education and training for professionals who provide care for infants in newborn intensive care nurseries and support their families.
Österreichische Gesellschaft für Kinder- und Jugendheilkunde (ÖGKJ)
The Austrian Society for Paediatric Medicine (Österreichische Gesellschaft für Kinder- und Jugendheilkunde – ÖGKJ) is a medical-scientific professional society that acts as a platform for paediatricians for the general public as well as within other medical disciplines.
The aim is to emphasize the significance of paediatrics including specialist care in general healthcare. In order to achieve this goal, the ÖGKJ provides targeted information. For paediatricians, the society offers numerous local and supra-regional training measures. This way, the ÖGKJ can guarantee high-quality education and training. Furthermore, the society tries to actively support scientific work and to contribute to health policy decisions.
Partnership for Maternal, Newborn and Child Health (PMNCH)
The Partnership (PMNCH) joins the reproductive, maternal, newborn and child health (RMNCH) communities into an alliance of more than 550 members, across seven constituencies: academic, research and teaching institutions; donors and foundations; health-care professionals; multilateral agencies; non-governmental organizations; partner countries; and the private sector. Working together our goal is a world in which all women, newborns, children and adolescents not only are healthy, but thrive.
The Partnership enables partners to share strategies, align objectives and resources, and agree on interventions to achieve more together than they would be able to achieve individually. The Partnership plays a central role in facilitating joint action on many fronts, mainly progress towards the United Nations Millennium Development Goals (MDGs) 4 and 5, to reduce child mortality and improve maternal health, as tracked by the Countdown to 2015 initiative, and through support for the Global Strategy for Women’s and Children’s Health and Every Woman Every Child.
Pain in Early Life (PEARL)
Pain in Early Life – PEARL – is a group of researchers, mainly from the Nordic countries, who are dedicated to help children to a life without pain. PEARL’s expertise lies within the fields of non-pharmacological pain management, pain assessment, and the role of parents in pain management. Our work targets three groups: parents, health care professionals and researchers, and PEARL collaborates with pain experts all over the world.
Preterm Birth International Collaborative (PREBIC)
The Preterm Birth International Collaborative (PREBIC) Inc. is a not for profit organisation supported by the March of Dimes, USA, and the World Health Organisation, Switzerland.
PREBIC is a multinational collaborative of clinicians and research scientists who aim to improve pregnancy and birth outcomes, optimising infant health and long term development. PREBIC’s preterm birth prevention programmes include workshops for scientists, clinicians and other health care professionals, development and coordination of research expertise nodes and the organisation of annual scientific meetings at the World Health Organisation, Geneva, Switzerland.
Preemie Parent Alliance (PPA)
The Preemie Parent Alliance is a network of organisations offering support to families of preterm infants. To ensure best outcomes for them, the Preemie Parent Alliance is dedicated to representing the needs and best interests of families with preterm infants in all facets of healthcare policy, care guidelines, advocacy, education and family support. As a national network the alliance is establishing a unified parent voice to advocate for infants, who cannot speak for themselves, and their families.
SAFE – Attachment Formation For Educators
The SAFE® – “Attachment Formation For Educators” project is a training program designed to enhance secure attachment between parents and their children. The prevention of attachment disorders is important, and especially the transmission of early childhood traumatic experiences across generations -and that is what this primary prevention program strives for.
SAFE® addresses all expectant parents up to the seventh month of pregnancy and is conducted in closed groups up to the end of the first year of the child.
Sociedad Española de Neonatología (SENeo)
The Spanish Society of Neonatology (Sociedad Española de Neonatología SENeo) is a scientific and non-profit association dedicated to the care of the newborn child.
The general purposes are:
- Encourage the development of the Neonatal and Perinatal Medicine in preventive care, training, education and research.
- Ensuring the right of the newborn infant be assisted by health institutions skilled in the knowledge needed.
- Advise the Public and Private Institutions, State Agencies Health, Social Services and Legal matters affecting the health, psycho-physical and social development.
- Transmit to society the appropriate recommendations to promote preventive health culture and newborn care.
- Encourage links between the different partners and the newborn care units, promoting training programs and scientific meetings.
- Create committees and commissions to develop specific aspects of the Neonatal and Perinatal Medicine.
Stiftung für das behinderte Kind
Die Stiftung für das behinderte Kind, the foundation for the disabled child, supports early diagnosis, prevention and early rehabilitation of disabled children. Implementation and development of screening and genetic counselling centres in Germany account for some of the successful work of the foundation in the past.
The Child Health Foundation (CHF) is actively involved in the healthy development of children and adolescents. It informs the public on key health issues and, in collaboration with partners and specialists, explains preventive strategies that can be implemented in day care, kindergartens and schools.
The operative implementation of the foundation’s work is based on three pillars:
- Prevention with programs applicable in practice
- Competence in the field of health prevention
- Effective public education
Health promotion and prevention are especially important for children. Nowadays pediatric and adolescent medicine can successfully treat a broad variety of illnesses. Yet, health promotion and the prophylaxis of illnesses still have a long way to go and remain key priorities.
Overall, the main goal of the CHF is to ensure the best possible start in life for children.
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Union of European Neonatal and Perinatal Societies (UENPS)
The Union of European Neonatal and Perinatal Societies (UENPS) is an organisation integrating the national european societies of neonatal or perinatal medicine. It represents countries and governing bodies of each national society. So it is not a “new” society in Europe but “the” Society of the European Societies, understood as integration of all societies and not for the single members of the community. Its feeling is to concentrate in a single organization all of the European Neonatal and Perinatal Societies.
Uplift -Aufwind e.V.
Technical innovations are always in the public eye. What about social innovations though? At Uplift, we have learnt that it is worth investing in social innovations and enabling sustainable change.
Ten years ago, the NGO Uplift – Aufwind started down exemplary new routes to support children and mothers in need living in underdeveloped countries. Uplift – Aufwind works in Kyrgyzstan, a small mountainous republic at the heart of central Asia, which was formally part of the Soviet Union. Kyrgyzstan is small and manageable enough for Uplift – Aufwind to try out innovative new approaches in collaboration with civil society and government bodies.
With an interdisciplinary team of local and international specialists, as well as dedicated volunteers and staff, Uplift -Aufwind focused on practical needs and developed a comprehensive early intervention program. Our biggest challenge was the state system, a remnant of Soviet times, which provided too little or absolutely no support to children and families in need, and instead shipped the children off to orphanages. It is not surprising that even today there are still more than a million children living in orphanages in the former Soviet Union. These children are social orphans – one or both their parents are still alive.
This is where we came in. Uplift – Aufwind strengthens families, prevents children being sent to orphanages and works to improve the children’s care within the orphanages. Through our prevention programs, where mothers are supported through pregnancy or directly after the birth, we were able to prevent 50% of cases of children being sent to orphanages. The Uplift Mothers Program, which provides therapeutic support to babies in state orphanages and prevents neglect in the orphanages, also paves the way for fast local adoptions. Our innovative idea has led to a 70% reduction in children treading the fateful path through the institutions.
World Prematurity Network
EFCNI is honoured to represent the European national parent organisations in the World Prematurity Network group as one of its founding members. The World Prematurity Network includes consumer and parent groups that are leaders in addressing preterm birth in their countries. Together we call for actions to prevent preterm birth and improve care for babies born preterm.
The following organisations are working closely together:
- LittleBigSouls (Africa) (founding member)
- National Premmie Foundation (Australia) (founding member)
- March of Dimes (USA) (founding member)
- Home for Premature Babies (China) (2011)
- BLISS, the Baby Charity (UK) (2012)
- Borngreat Foundation (Africa) (2013)
- Con Amor Venceras (Latin America) (2013)
- Canadian Premature Babies Foundation (Canada) (2014)
- Prematuridade – Brazilian Parents of Preemies’ Association (Brazil) (2016)
Our objective is to provide a platform for all members to exchange ideas and collaborate on worldwide activities like World Prematurity Day on November 17, to raise awareness in their respective regions.