Our Projects

(c) Deathtostock (c) EU Parliament: Matt Banks/ FreeDigitalPhotos.net

As the voice of preterm infants and their parents, our work relies on educating the general public, raising awareness for preterm birth and promoting the issue with professional and political stakeholders. Together with our partners we are determined to put our vision into practice. Our projects include:

Developing European Standards of Care for Newborn Health

EFCNI initiated and coordinates the project which brings together health experts, professional societies, civil society organisations, representatives of national parent organisations, third party advisors and industry partners. Together, they are developing harmonised standards for the care of preterm and newborn infants with illnesses in Europe. 

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In 2017, the project has been awarded one of the most innovative “Landmarks 2017” of the initiative Germany – Land of Ideas.

Recommendations for the operation of milk banks

Within the new milestone project, EFCNI brings together well-known experts in the fields of lactation, nutrition, and neonatology. They are working together in order to develop recommendations for the best possible setup and operation of milk banks in Germany, Austria, and Switzerland.

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Web camera systems in the neonatal intensive care unit (NICU)

Web camera systems in the NICU allow virtual visitation of the hospitalised infant by parents and family members. In the course of the implementation, it is important to involve the perspective of all involved groups. For this purpose, EFCNI, in close collaboration with well-known experts from hospitals in Germany and Austria, will develop a position paper in order to support hospitals interested in an installation of web camera systems.

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Research on European Children and Adults born Preterm (RECAP preterm)

EFCNI is a member of the EU-funded project Research on European Children and Adults born Preterm (RECAP preterm). The aim of the project is to improve the health, development and quality of life of this patient group by creating a platform of national and European cohorts with children and adults born very preterm or with a very low birth weight. EFCNI’s role in the project lies in co-leading all activities regarding dialogue, dissemination and sustainability by reaching out to the scientific community, clinicians, health care professionals, patient organisations, the general public, policy makers, and other potential stakeholders at the local, national and EU level to enable the visibility and health and societal impact of RECAP.

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This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 733280.

Screening to Improve Health In very Preterm InfantS in Europe (SHIPS)

As a member of the research consortium, EFCNI is a partner of the EU-funded Screening to Improve Health In very Preterm InfantS in Europe (SHIPS) project which aims to improve follow-up programmes in Europe by studying their impact on children and their families. Follow-up screening and prevention programmes identify health problems early, enable interventions to improve health and development and allow optimal management of health care.

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This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 633724.

World Prematurity Day

Since 2009, 17 November is the official day to raise awareness for preterm infants worldwide. Initiated by EFCNI and various organisations, it is now celebrated in more than 100 countries with countless activities, reaching more than 1.6 billion people worldwide. 

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Socks for Life

Socks for Life is a year-round worldwide campaign where people join forces and work in partnership to make a difference for preterm birth and its consequences for affected families. Everyone is warmly invited to join Socks for Life. Together we are strong and any activity, however small it may seem helps to make a difference and improves the situation for preterm babies and their families.

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Policy and Action

An important aspect of our work is to evaluate the situation of preterm infants and their families in Europe. We aim at highlighting the key concerns of this growing patient group and give politicians, healthcare representatives, parent organisations, and other concerned stakeholders a good basis for their decisions.

In our European Benchmark Report „Too little, too late” (click here for German version) (2009/2010) we give an overview on the impact of preterm birth across Europe. The report paints a compelling picture of the differences that exist in levels of care and the lack of national health strategies concerning maternal and newborn health.

Based on the findings, we published “Caring for Tomorrow -  the EFCNI White Paper on Maternal and Newborn Health and Aftercare” in 2011/2012. The publication offers recommendations on how to improve existing healthcare plans for maternal and newborn health and hopes to inspire the development of national healthcare strategies and programmes. 

Alongside the White Paper, we launched a European-wide Call to Action for Newborn Health, 10 demands by parents and health professionals to ensure that every baby born in Europe gets the best best start in life.


Our Brochures

1 in 10 babies is born premature. Worldwide. Still, many expecting families are unaware of possible ways to prevent a preterm delivery. Once a baby is born too soon, many parents feel left alone and lack information about their situation. With our brochures we help expecting parents and parents of preterm infants to receive the information they need to find their parental role and self-confidence in caring for their baby. 

The brochure bonding and care for the preterm infant "Bindung & Pflege von Frühgeborenen" addresses parents or families of newly born preterm children. They receive valuable tips on how to bond with their baby and how to be involved in the care for their baby while they are in the neonatal intensive care unit. The content of the brochure in English language can be found on our homepage here. 

The pregnancy brochure “Gesund schwanger” was developed together with many renown experts and provides expecting parents with the most important information about how to have a healthy pregnancy - to give their child  from the very beginning the best conditions for a healthy life.  

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