Nee-eten! is a patient association for parents of children that refuse to eat or have a feeding tube. The association has three main objectives:
1) Contact between patients: The association organises various contact days.
2) Awareness: The association provides information to the parents and (para) medics.
3) Advocacy: The association attempts to better treatments for children and stimulate enhanced cooperation between various therapists.
Children's Liver Disease Foundation
Children's Liver Disease Foundation (CLDF) was formed in 1980 and is a unique national UK-based charity dedicated to taking action against the effects of all liver diseases of childhood.
Based in Birmingham, CLDF is:
IPOPI, the International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide. Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key stakeholders.