European Standards of Care for Newborn Health project is an interdisciplinary European collaboration to develop standards of care for key topics in newborn health. The project brings together more than 220 healthcare professionals of different professions, parent representatives and selected industry specialists, from more than 35 countries.
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After the positive feedback on 11 months – 11 topics, we decided to continue this communication motto also in 2017. For the eleven months from February to December 2017, we will focus our social media and online communication once again on one newborn health topic per month. As you may know, the eleven topics were selected so that they correspond to the themes of the eleven Topic Expert Groups of the European Standards of Care for Newborn Health project.
Above this, 11 months – 11 topics has a new look this year: We will share expert videos, parent statements and give you a useful insight into the eleven newborn health topics. In February, we will start with Data collection and documentation. Follow us on social media, such as Facebook, Twitter, LinkedIn, Instagram, and on our website to find out more soon.
Within the new edition of 11 months - 11 topics, we started a video series with interviews with the Chairs of the 11 Topics Expert Groups of the European Standards of Care for Newborn Health project. Every month, we will launch a new video clip, starting with an interview on Data collection and documentation.
In 2016, we started our communication motto 11 months - 11 topics: From February to December 2016, we published interviews with all Chair Teams from the 11 Topic Expert Groups of the European Standards of Care for Newborn Health project to get an insight about the hot topics and major challenges in their field.
From 11 to 12 April 2016, the members of the Chair Committee of the European Standards of Care for Newborn Health project came together for the 3rd Chair Committee Meeting in Berlin. The focus of the meeting was the ongoing project work. To that aim, all Chair Teams presented the work of their Topic Expert Groups. The group-specific presentations were complemented by project review and outlook presentations by our Project Manager Dr Iris Nikola Knierim.
The 2nd Chair Committee meeting of the European Standards of Care for Newborn Health project took place from 15 to 16 June 2015 in Eching, Germany. We are delighted that all members of EFCNI’s Parent Advisory Board as well as the Chairs and Vice Chairs of the project’s working groups could attend the meeting. During the two days of intense work, the project moved an important step forward.
On 10 and 11 September 2014 we started our new project to draft European Standards of Care for Newborn Health. 42 participants from all over Europe took part in a journey to enable every baby the best start in life.
We are very happy and excited about the start of EFCNI’s Standards of Care for Newborn Health project, EFCNI’s next milestone to tackle inequalities in newborn health in Europe. The official project start was on the occasion of the opening event of the Socks for Life art exhibition in the European Parliament in Brussels on 7 April 2014.
Following the handover of European votes for the Call for Action by former preterm infants to Vice President of the European Parliament Rainer Wieland, the stakeholders present officially declared to collaboratively work on European-wide Standards of Care for Newborn Health. The need for harmonised standards and their development in a collaborative approach have been endorsed by many healthcare societies and parent organisations. All of them have visualised their support with their logo. Visitors of the exhibition could equally show their support through their signature.
This collaborative project under the auspices of EFCNI will bring together health experts, professional societies, civil society organisations, representatives of national parent organisations, third party advisors and industry partners to develop harmonised standards for the care of preterm and newborn infants in Europe. The standards will cover all topics from care at birth, neonatal intensive care as well as follow up and continuing care to ethical questions, education of neonatal health professionals, data collection and documentation. To this end, interdisciplinary Topic Expert Groups will be dedicated to one topic of newborn health. The standards will run through an extensive consultation process before being publically available online. We are confident that providing a set of expert-developed standards for newborn health will be an important step towards improving the quality of preterm and newborn care in Europe.
A brief review
This project will tie in directly with EFCNI’s previous work against inequalities in maternal and newborn health in Europe.
In 2010, EFCNI published an EU Benchmarking Report ‘Too Little, Too Late’ to help capture for policy makers the impact of prematurity across Europe. This report painted a compelling picture of the differences that exist in levels of care when it comes to maternal and newborn health in Europe. It also began a reflection process amongst parents, medical professionals, academics and industry partners to move from an identification of the various provisions that EU Member States have made for newborn infants, to concrete proposals for improving the standards of care in Europe.
The next milestone was the publication of the EFCNI White Paper on Maternal and Newborn Health in 2011. In this report, health care providers from different disciplines and professions as well as parents and professional societies were asked to provide their perspectives on challenges and evidence-based recommendations in the field of pre-conceptional, maternal, newborn care, follow-up and continuing care. As a result of these contributions, a set of key recommendations for each field were developed.
The next logical step is the development of harmonised standards that will incorporate and expand on these key recommendations. This will be achieved by EFCNI’s Standards of Care for Newborn Health project.
The whole project is kindly supported by AbbVie, Philips Avent, Shire and Nestlé Nutrition.